Guest guest Posted March 11, 2004 Report Share Posted March 11, 2004 I have 4 children and live in the New England area. Three of my children were born with BPES. Two of the children have completed there surgeries and the youngest is going in April. I feel with my experience ,that maybe I could help someone else. My husband is also affected. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 Hi Nichola Thanks for sending a message - welcome to the group. Where do you live? We live in Hampshire, UK with our two year old daugher who has bpes. Holly is the first in the family and has had one surgery already at Moorfields hospital in London. How old is your daughter? Would be great to find out more about you and your experiences. Kind regards Lucy (Gosport, Hampshire)nik2b <nik2b@...> wrote: Hi have been looking for information and support 2 do with this condition, I myself have it and I have had to put up with it for the last 37 years. I'm a female and also have a daughter with it. Nichola Answers - Got a question? Someone out there knows the answer. Try it now. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.