update on the database - 29 people participated

[Guest guest]

Hi All

Thank you to all the people who have participated.

There are lots of new people who have joined the group, so I am

repeating the instructions. (see end of this email).

Do you think it would be worthwhile to have a database of surgeons?

If you think it is a good idea, let me know and I will sort something

out.

Shireen

Instructions for entering info on the database:

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1. click here: blepharophimosis/

2. then click on " Sign In " - it is in the top left corner of the

screen. If you are a new user, you will have to click on " Sign Up " .

3. After you have signed in, you will see " My Groups " on the left of

the screen, and " blepharophimosis " under it. Click on blepharophimosis

4. Now click on " Database " , this is in the left of the screen, just a

little below " Photos "

5. Click on " BPES List "

6. Now click on " Add Record "

FOR THOSE WHO ALREADY KNOW HOW TO SEE THE PHOTOS - start from step 4

Please note that you do not have to put all the info in. For example,

if you prefer to just enter the country you live in, then that is OK.

I only wanted to put in my first name, so that is what I have done.

Anyone can add records. But only I can alter them. This is some

measure of making sure that somebody does not accidentlaly alter

another person's entry.

So if you make a mistake, simply put the information in a second time

and write me a note asking me to delete the first one.

If you are a parent of a child with BPES, then add one entry for your

child, as if they were entering the information for themselves.

Shireen