(No subject)

[Guest guest]

Hi Stayce and all other new members welcome to the group! Thanks for

wanting to share your experiences.

Stayce why did you have so many operations?

You also wrote just one thing which has kept me busy for some time

now.

I think that when my daughter was born with BPES (the first in the

family) she looked beautiful but was of course worried for her

eyesight.

After her ptosis operation, which went really well, I had to get

used to the scar or fold they put in her eyelid to imitate a fold.

(or is it necessary for the op. to succeed?) The smooth eyes of

Asian people look pretty as well without folds etc. I think that

perhaps these artificial things, plus the extra scaring caused by

the operations could have the opposite effect to trying to make the

eyes look 'normal'. Anyway all these operations and the scars they

leave behind do worry me, as I think that all the BPEi kids already

look pretty without the operations. This does not mean that I think

they have to enjure obscured eyesight, this should be operated on at

any time.

The big question which this is all about is: Is there anyone out

there that has been operated on and does not encounter stares or

questions any longer? Thanks.

Bernice, Nina's mother

> Hi!

> Wow I'm still in ahh over how many other people are faced w/ the

> same situations w/ blepharopimosis. I'm 20 yrs old and had over 25

> surgeries from having a muscle taken from my leg to skin behind my

> ears attached to my eye lid. I've had artificial muscle to help

hold

> my eyelids up also. With that said, if anyone has any questions

about

> surgeries, I can give a honest opinion from a first had basis.

Other

> than that I can start off by saying how mean our society can be. I

> can remember being in elementary school and being picked on and

still

> I get strange looks. In my opinion, dealing with others was much

> harder on me than any surgery could of posssibly been. I still get

> faced w/ it on a daily basis. When people describe who I am, they

> refer to my eyes. It's a never ending label I feel like i'm faced

> with. If I could do it all over w/ I don't know if all of the

> surgeries were necessary. My scars will always be there no matter

how

> much make up i put on. Any questions about anything just post a

> message

> -stayce