Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 can i just say welcome to all the newer members , i havent been on here long but have already made a few friends and up to 3 days ago never knew anyone else in the world had this ...... so thank you . i cried when i could finally talk about it . im now 35 ... my son has bpes , my daughters also but they dont live with me and with two different mothers its hard ..... my sons mothers has gone to moorfields as i did andhe has had the best treatment . my daughter well me and my daughters mother dont get on and she dont understand about the condition and how it effects girls ... we all do ... i am now going through a court battle but its hard ....... i am a good parent and life has been hard ..... but now i want to say thanks this site is here and i have found you ......... can i suggest a link to moorfields eye hospital in london please ...... when i first went there i looked and asked and they didnt know of any support group ........ this is so good trust me ,,,,,,,,, just being able to talk and not feel alone in this world ,,,,,, thanks scott Quote Link to comment Share on other sites More sharing options...
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