Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 antoinette_i <antoinette_i@...> wrote: Do babies with bleph usually crawl at the normal eight months, or are they sometimes reluctant to do this particular skill due to bleph?ToniMy baby has been crawling snice 1 week before her 6mth .. and has been crusisingaround furniture.... around 7mths and now walking at 10mths.. shell will be having her first surgery in 9 days !!! I think bleph has nothing o do with child is devloping fast or slow they decide ont here own all bbys are diffrent weather crawling or walking etc: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hi toni....In response to crawling....my son Ethan has NO problems so far with anything, he's the same in progress as our 1st son (who doesn't have blephs)....Ethan has been crawling since he was about 7+ months, he is standing by himself for a long time before falling over, hasn't got down the whole *take a step* yet:)....but VERY soon, he has taken 1 or 2 tiny steps before falling over though, he's been walking with his walker for about 2 months now! he is 11 months old, his 1st b-day is JAN 24th 04!!! my our 1st son is JAN 25!!! and he will be 5 years old....anyways, Ethan is developing exactly like our 1st son, my best friend has a boy 5 weeks younger than ethan and he still can't crawl! So I think Ethan is quite advanced comparing:).... I read all these e-mails with such bad things about having blephs, I don't see any of those things! I am sure there are different degrees of blephs, but when I have read some e-mails I get off feeling so sad, but happy, because other than Ethan having *small eye-lids* thats all that's different with him:)....Hope I am wording this the right way, I don't won't it to sound negative...I just feel Ethan can do ANYTHING normal his brother could do, just becasue he has blephs ( small eye-lids) doesn't make him different from you or me:) -- blepharophimosis Eight months old Do babies with bleph usually crawl at the normal eight months, or are they sometimes reluctant to do this particular skill due to bleph?Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 --- In blepharophimosis , " antoinette_i " <antoinette_i@y...> wrote: > Do babies with bleph usually crawl at the normal eight months, or are > they sometimes reluctant to do this particular skill due to bleph? > Toni is almost 10 months old and is just now tolerating being on his stomach. He prefers to scoot around on his bottom (he was an early " sitter " and sat very steadily). He also has always had very strong legs and pulls himself up to stand now. In every other way developmentally he has been on time or early. I think his reluctance to being face down is a combination of his own reaction to the severity of his visual impairment when on his stomach, since his eye openings were only 1mm until he had his first surgery. he also hated his stroller, being so low to the ground, but loved being put in the shopping cart up high or in a backpack. Starting from 5 weeks old, when carried, he would squirm to be in a position where he could throw his head backwards over our forearms, so he could see better out of the tiny slits of his eye openings. he still seems to use this scope of vision occassionally, even though he can see much more now. (at least he is very flexible an d has a very strong neck!) Now that he's older and each surgery has progressively opened his eyes more, he doesn't mind the stroller as much and will put himself on his stomach in attempts to slither towards what scooting can't access. I think his curiousity has begun to replace his need to remain in his comfort zone! I think eventually they all grow curious enough to want to start exploring independently, but each child's temperament and other factors combine to make it happen uniquely for each one. My own opinion, of course. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Toni- Did you check with your pediatrician? Does she have any concerns? Or does he seem to be developing within the expected parameters? We have a fabulous pediatrician, but is not our first & I kept saying I felt he was delayed. At first everyone thought it was due to Bleph & the large hole he had in his heart, but after his heart healed from heart surgery, he still was delayed. All the specialists were blaming Bleph but I found no research that corresponded to his delays. Turns out in addition to Bleph he has cerebral palsy! I was so relieved he received a diagnosis because since then he has had lots of therapy and that little scrapper is doing great! The moral is... you're the mom. If you think something's not quite right keep seeking answers until you're satisfied. Sari Quote Link to comment Share on other sites More sharing options...
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