Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Hi everyone. I am now managing to finish my message from before. I have 2 sons and the youngest has BPES. I have added a photo of myself and my son, Sam who is 6 months old now. I had one operation when I was about 3 or 4 but remember nothing of it and rely on information from my sister e about it. I am now 28. As she has already said, it is great to finally find out what we have. It may sound ignorant however, it was never explained to us and it has only been researched by us after es daughter had her operation, the results of which are fantastic. Sam has had one hospital appointment in Glasgow where his eye sight was checked and they advised it was fine. They have since referred us to another surgeon who will no doubt carry out the brow suspension later on and continue checking his eye sight. It is great to hear from everyone. Quote Link to comment Share on other sites More sharing options...
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