Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hello, I come from a family of bpes from scotland and am very grateful to have found this website. After 32 years, three operations and two children (one with bpes) I have finally found out the name of my syndrome, what it is and how it is passed down. Although I knew the condition is unusual I didnt reaslise how unusual! My daughter Mia at the age of four has had her first surgery (brow suspension) which has been a great success. With regards to the infertility aspect we do not seem to be affected as my Father who has BPES has three daughters two of which have BPES and who both have children. I would be happy to hear from anyone who wants to chat. e Quote Link to comment Share on other sites More sharing options...
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