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Re: Kiwi meeting

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bobjnr wrote:

> Hi everyone, we are a little concerned regarding the lack of response

> over our Labour Weekend meeting/seminar for BPES. We would love to have

> some feedback regarding this.

> Cheers,

If I can talk my domestic authorities into a NZ holiday at that time,

I'll be there. I can't think of a better excuse. We've talking about

doing NZ for years, so it won't take much convincing. Will depend on

alignment with Oz school holidays, but.

I'm surprised you haven't had much response, given how many NZistanis

are in this group.

> and Rob

(Janet and) Rob.

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Hi Rob, it would be great if you could make it over for next October. We had a feeling you might come over if it was possible for you. We welcome any suggestions you have also.

Cheers,

and Rob

Re: blepharophimosis Kiwi meeting

bobjnr wrote:> Hi everyone, we are a little concerned regarding the lack of response > over our Labour Weekend meeting/seminar for BPES. We would love to have > some feedback regarding this.> Cheers,If I can talk my domestic authorities into a NZ holiday at that time, I'll be there. I can't think of a better excuse. We've talking about doing NZ for years, so it won't take much convincing. Will depend on alignment with Oz school holidays, but.I'm surprised you haven't had much response, given how many NZistanis are in this group.> and Rob(Janet and) Rob.

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Hello ,

Have been away to the South Island, you may have read Leeanns

message!! We think your idea sounds like a good one & we would be kee

to see it happen. It was lovely to meet Ethan & his family, although

we missed meeting his older bro`. Ethan is such a friendly little

guy - was not shy around us strangers at all.

On that note, we are coming to Auckland for an appt with geneticist

in a couple of weeks & we could arrange to meet you if you would

like? Let me know......

Hello to all others

Maree--- In blepharophimosis , " bobjnr " <bobjnr@s...>

wrote:

> Hi everyone, we are a little concerned regarding the lack of

response over our Labour Weekend meeting/seminar for BPES. We would

love to have some feedback regarding this.

> Cheers,

>

> and Rob

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Hi Maree, we would love to meet up with you both. Just let us know your plans and I'm sure we can arrange something to catch up. Are you staying overnight in Auckland? Feel free to email us direct to: bobjnr@...

Glad to hear you were able to meet with Leanne and family.

Kind Regards,

and Rob

blepharophimosis Re: Kiwi meeting

Hello ,Have been away to the South Island, you may have read Leeanns message!! We think your idea sounds like a good one & we would be kee to see it happen. It was lovely to meet Ethan & his family, although we missed meeting his older bro`. Ethan is such a friendly little guy - was not shy around us strangers at all.On that note, we are coming to Auckland for an appt with geneticist in a couple of weeks & we could arrange to meet you if you would like? Let me know......Hello to all othersMaree> Hi everyone, we are a little concerned regarding the lack of response over our Labour Weekend meeting/seminar for BPES. We would love to have some feedback regarding this. > Cheers,> > and Rob

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Sounds great guys..We would definatly be in for it...

Leah (Ethans Mum)

blepharophimosis Kiwi meeting

Hi everyone, we are a little concerned regarding the lack of response over our Labour Weekend meeting/seminar for BPES. We would love to have some feedback regarding this.

Cheers,

and Rob

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