Re: Moorfields Research study - in London, England

[Guest guest]

Im not in England but I am interested.

Ami Helge

From: "shireenimohandes" <andy.bowles@...> Reply-blepharophimosis blepharophimosis Subject: blepharophimosis Moorfields Research study - in London, England Date: Tue, 02 Nov 2004 20:52:21 -0000 Hi Moorfields Eye Hospital in London is conducting a study along with another London hospital. They would like female volunteers to help them out. They have around 30 or so, and are wanting to see around 100. By participating in the study we would be helping them to find out more about Type 1 and Type 2 BPES. I have lots more information, please contact me if you would like to help, and I will forward the information to you. I went along today. I was there for about 20-30 mins having an eye exam, and then I donated a very small amount of blood. If you know of anyone who might like to help, please forward this to them. They may not be part of the group. Many thanks Shireen, London, England

[Guest guest]

Dear Shireen,

We would like to be a part. Can you tell us more? You know we live in Bahrain so if needed we can send the blood sample and are ready to fill any questionnaire if there are questions to be answered.

No plans to come to London until Anushka is 3 years old when her first operation is scheduled (for epicantal correction).

Kind regards

lata & deepakshireenimohandes <andy.bowles@...> wrote:

HiMoorfields Eye Hospital in London is conducting a study along with another London hospital. They would like female volunteers to help them out.They have around 30 or so, and are wanting to see around 100. By participating in the study we would be helping them to find out more about Type 1 and Type 2 BPES. I have lots more information, please contact me if you would like to help, and I will forward the information to you.I went along today. I was there for about 20-30 mins having an eye exam, and then I donated a very small amount of blood. If you know of anyone who might like to help, please forward this to them. They may not be part of the group.Many thanksShireen, London, England

[Guest guest]

Hi Shireen

I would like to take part so, would appreciate if you could let me know a little more. Do you need to be in London or will they let you participate from home. Im in Glasgow.

Thanks

shireenimohandes <andy.bowles@...> wrote:

HiMoorfields Eye Hospital in London is conducting a study along with another London hospital. They would like female volunteers to help them out.They have around 30 or so, and are wanting to see around 100. By participating in the study we would be helping them to find out more about Type 1 and Type 2 BPES. I have lots more information, please contact me if you would like to help, and I will forward the information to you.I went along today. I was there for about 20-30 mins having an eye exam, and then I donated a very small amount of blood. If you know of anyone who might like to help, please forward this to them. They may not be part of the group.Many thanksShireen, London, England

[Guest guest]

Shireen-

I'm far from London....South Carolina, USA...to be exact however I

would love to be a part of a study to advance to knowledge. Email me

w/ information if you get a chance....thanks

-stacy