Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 Hi Kerry, Thank you for answering. With the support of all the nice replies that I have recieved from the group, my husband and I have decided to try for another baby when Alice is 1 years old. As you wrote, as long as the childern are healthy the belph is not such a big deal. I consider myself a very happy person with a wonderful family and my bleph hasn't stopped me from leading a good life. I had a hard time as a teenager but a lot of young people do, it is a hard time to go through. Also I really feel that children need siblings. So thank you again for your kind and encouraging reply. Stinakerry bennett <mnmom1325@...> wrote: hi stina my name is kerry and my husband and daughter both have bleph we thought long and hard about having another child but we would not have it any other way we had a healthy baby boy last year and he does not have bleph and we are thinking about a third its a 50 50 chance for us but we are not to worried as long as our children are healthy. My husbands uncle has 6 children with his wife and only one of their children has bleph. kerry Stina Lasu <stina_ls@...> wrote: Stina Lasu <stina_ls@...> wrote: I you might know by now my name is Stina and I'm new to this group. I have blepharophimosis. My father has it (and his mother had it), my brother and my sister and also my baby, Alice, who is 3 months old. I have always wanted to have more than just one child. I have always loved my brother and sister and want to give Alice siblings. I'm so close to my brother and sister and want to give Alice the same opportunity in her life. I guess that the probability that my childern will be born with bleph. most be rather high... Do you think that it is wrong to have more children, knowing that I probably will pass on belph. to them? I really want Alice to have a brother or sister. Personally, I think that you can have a wonderful life despite the bleph. How do you think and feel about this? Those of you with bleph. are you planning to have several childern? I sincerely hope that noone gets oppendend by this question. I guess it is my own insecurity that makes me want to hear your opinions. I just recently found out about bleph. and had a big chock. It is wonderful to get in contact with others about this rare syndrom. Greetings from Stina and Alice Quote Link to comment Share on other sites More sharing options...
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