Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 The Blepharophimosis group currently has 141 members. Over the past year a few people have resigned from the group. The database has 41 members. Very approximately, I think that about one third of the members have put information into the database. Where are people from? ----------------------- Country - and number of entries (on the databse, NOT the group memebers) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ New Zealand: 6 Australia: 2 Canada: 5 USA: 18 (states include: AR, CA, GA, IL, MA, MD, OH, PA, VA, WA, WI) Austria, Bahrain, Netherlands, Denmark: 1 each Germany: 2 UK: 4 If I had to make a guess - I would say that for every 200,000 people, there is one person with BPES. ============================================================================ ======================== So, that makes it about 1,500 people in the USA. About 100 people in Australia - what do you think of this estimate Rob? 23 people in Norway? (I have met 1 person in Norway with BPES.) 82 people in The Netherlands ... Dolph, Bernice ... what do you think? UK would have about 300. I am very interested to hear what people think about my estimate, or should I say " guess " . Shireen Quote Link to comment Share on other sites More sharing options...
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