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Hi Leanne,

Thank you for the nice things that you said about Alice, she is our little angel!

My eyes look ok now but I always wear make-up, it is like my mask, I can't leave the house without eye make-up... I was being teased and bullied at school for a couple of years and that has damaged my self-confidence for a life-time, I just don't seem to get over my looks completely.

I had two surgeries, one at age 6 and another one when I was 17. People don't notice that I have bleph. So I hope that the result will be just as good for Alice when she has her surgery, otherwise we'll cope, I'm sure!

Stinaleelee <tltne@...> wrote:

Hi again,

I just looked at your pix....Alice is so beautiful:) what a cutie-pie:) And looking at your eyes, I would NEVER had guessed you had bleph! Your eyes look great! Apart from the surgery u had at age 6, have u had any more?

Leanne.

-- blepharophimosis About siblings

Stina Lasu <stina_ls@...> wrote:

I you might know by now my name is Stina and I'm new to this group. I have blepharophimosis. My father has it (and his mother had it), my brother and my sister and also my baby, Alice, who is 3 months old.

I have always wanted to have more than just one child. I have always loved my brother and sister and want to give Alice siblings. I'm so close to my brother and sister and want to give Alice the same opportunity in her life. I guess that the probability that my childern will be born with bleph. most be rather high...

Do you think that it is wrong to have more children, knowing that I probably will pass on belph. to them? I really want Alice to have a brother or sister. Personally, I think that you can have a wonderful life despite the bleph.

How do you think and feel about this? Those of you with bleph. are you planning to have several childern?

I sincerely hope that noone gets oppendend by this question. I guess it is my own insecurity that makes me want to hear your opinions. I just recently found out about bleph. and had a big chock. It is wonderful to get in contact with others about this rare syndrom.

Greetings from Stina and Alice

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