Thank you

[Guest guest]

Dear ,

Thank you so much for your answer! It really helped me to put things in the right perspective. I'm so sorry for all who can't have children...I do consider myself extremely lucky to have my wonderful daughter.

Again, thank you so much for your kind message.

Stina

Kati Graw <katigraw@...> wrote:

Hello Stina,

My name is and I am from Canada, but I was born in Finland, so we are like neighbours.

I am the first in my family to have BPES. I have one brother and one sister who don't have it. I am also very close to my siblings. I have one son, Tyler, who has BPES also. My husband and I have tried everything in our power to have more children, but unfortunately we cannot. I would give anything in the world to have been able to have had more children, and to give siblings to my son.

So, in my opinion anyway, I would not hold back having more children because of the BPES. There are so many worse things, and there is a 50/50 chance that your next child will NOT have it. Consider yourself very lucky to have the option for more children since so many of us do not.

Hope this helps with your decision.

Stina Lasu <stina_ls@...> wrote:

Stina Lasu <stina_ls@...> wrote:

I you might know by now my name is Stina and I'm new to this group. I have blepharophimosis. My father has it (and his mother had it), my brother and my sister and also my baby, Alice, who is 3 months old.

I have always wanted to have more than just one child. I have always loved my brother and sister and want to give Alice siblings. I'm so close to my brother and sister and want to give Alice the same opportunity in her life. I guess that the probability that my childern will be born with bleph. most be rather high...

Do you think that it is wrong to have more children, knowing that I probably will pass on belph. to them? I really want Alice to have a brother or sister. Personally, I think that you can have a wonderful life despite the bleph.

How do you think and feel about this? Those of you with bleph. are you planning to have several childern?

I sincerely hope that noone gets oppendend by this question. I guess it is my own insecurity that makes me want to hear your opinions. I just recently found out about bleph. and had a big chock. It is wonderful to get in contact with others about this rare syndrom.

Greetings from Stina and Alice