Thank you Min

[Guest guest]

Min,

Thank you so much for your message! I just love this group, it really helps me a lot to hear from others in the same situation how they think and feel.

We have decided to try for another baby when Alice is about 1 year and if we are lucky enought to get this baby we'll be so happy, wheter the baby is born with or without blepharophimosis. As you wrote, it really is nothing serious, like a life-threatening desease.

Thank you all so much for helping me to look up on this in the right perspective.

Stinaminnielin202 <minnielin202@...> wrote:

hi Stina,Welcome to the group. I was in the same situation as you are now when I had my daughter. My father and 2 older sisters have bleph. I have it too and passed it onto my daughter who will be 7 months next week. I am the only one in my family that passed it onto my child. This being the case, having another child was very discouraging. but I use my mother's situation as inspiration. After having 2 daughters with bleph, it didn't stop her from having 2 more daughters. Bleph is nothing. It is not a disease. It is not a life threatening disorder. What it is, is just small eyes. That's it. Be glad that you can have children as there are others who cannot. Be glad that you can provide your child a sibling to enjoy as you have enjoyed yours.

So as for me, I've decided to have another child...maybe in about couple of years. Just as long as my child is born healthy, I don't care if he/she has bleph. Hope this helped..Min> > I you might know by now my name is Stina and I'm new to this group. I have blepharophimosis. My father has it (and his mother had it), my brother and my sister and also my baby, Alice, who is 3 months old.> > I have always wanted to have more than just one child. I have always loved my brother and sister and want to give Alice siblings. I'm so close to my brother and sister and want to give Alice the same opportunity in her life. I guess that the probability that my childern will be born with bleph. most be rather high...> > Do

you think that it is wrong to have more children, knowing that I probably will pass on belph. to them? I really want Alice to have a brother or sister. Personally, I think that you can have a wonderful life despite the bleph.> > How do you think and feel about this? Those of you with bleph. are you planning to have several childern?> > I sincerely hope that noone gets oppendend by this question. I guess it is my own insecurity that makes me want to hear your opinions. I just recently found out about bleph. and had a big chock. It is wonderful to get in contact with others about this rare syndrom.> > Greetings from Stina and Alice