Re: Hi! My first posting...

[Guest guest]

Hi there...I am not familiar with Chicago...but I heard that there

are a couple of great surgeons in St. Louis...will try to find out

their names...but that is a starting point for you if interested.

Debbie

> Hi, everyone. Some of you I've met before in other venues.

>

> I have an adorable 2 1/2 year old, named , with BPES. He's our

> middle child and we have no history of BPES in either family. He

has

> the classic eye lid shortening, droopy lids & slanted eyebrows,

along

> with a large hole (VSD) in his heart at birth. He had the hole

closed

> surgically at 5 months and that's Fabulous now. He's also been

> diagnosed with cerebral palsy and receives LOTS of therapy, but

he's a

> persistant little thing and is now climbing everything and walking.

> We call him " Trouble " because he loves to do those typical toddler

> things- pull things out of the trashcan, climb on tables and try to

> swing from the chandelier ( literally!), throw his food, tries to

> climb in the oven and empty out the fridge.

>

> We're looking at surgery here in Chicago in the next year. Anyone

> familiar with doctors here? We're willing to travel- anyone have

> great outcomes? Horrible experiences?

>

> Thanks!