Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 Hello Group I first posted a message back in December 2003. I just had found out I was pregnant and my husband has BPES. Jon (my husband) was unfamiliar with BPES and I wanted to know more about the disorder. I joined the group and asked around and got some feedback regarding the chances of our child having BPES. The chances were 50/50. During my pregnancy I put it towards the back of my mind, because I knew no matter what I would love our child to no end! Hannah Rae was born August 3rd. She does have BPES and she is the most precious girl in the whole wide world. She went to the eye doctor when she was 6 weeks old, and goes back on the 18th of Nov. The doctor said there is not much we can do at this point. I am worried about her eye development? If anyone can give me advice about what I should have the doctor look for please help! She loves the light and absolutely loves the ceiling fan! I have submitted photos under the folder Hannah Rae. I am so thankful this message board exists! Thanks to all who have suggestions! Quote Link to comment Share on other sites More sharing options...
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