New to the group and have questions

[Guest guest]

hello. I was born with Blepharophimosis and have had several

operations to correct some of the deformities in the eyelids. Two

years ago I was tested and told that " I had the best form of birth

control " with premature ovarian failure by the edinocrine clinic at

the university of missouri, columbia. Yes it was quite a shock. My

mother had never been educated on what the syndrom involved and now

at 35 yrs old I am very curious as to what else I should come to

expect from this rare disorder. I have had hearing problems since

childhood but again do to the absent mother syndrom, nothing was

ever done about it and now i am having more and more problems. Has

anyone else had hearing loss? I am now living in sweden and in the

process of having my hearing tested. any links or additional info

would be greatly helpful

Thanks

Ami