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Hi, everyone. Some of you I've met before in other venues. :)

I have an adorable 2 1/2 year old, named , with BPES. He's our

middle child and we have no history of BPES in either family. He has

the classic eye lid shortening, droopy lids & slanted eyebrows, along

with a large hole (VSD) in his heart at birth. He had the hole closed

surgically at 5 months and that's Fabulous now. He's also been

diagnosed with cerebral palsy and receives LOTS of therapy, but he's a

persistant little thing and is now climbing everything and walking.

We call him " Trouble " because he loves to do those typical toddler

things- pull things out of the trashcan, climb on tables and try to

swing from the chandelier ( literally!), throw his food, tries to

climb in the oven and empty out the fridge.

We're looking at surgery here in Chicago in the next year. Anyone

familiar with doctors here? We're willing to travel- anyone have

great outcomes? Horrible experiences?

Thanks!

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