Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 Hi All.. My son Ethan who is nearly 5 was diagnosed with BPES when he was just over 1 year old.. There is very little support here in New Zealand and I know of on;y two people in NZ whose children have the syndrome. I am very keen to correspond with others who are Mums of BPES children. My son had the operation to correct his ptosis at 2.5 years of age and the difference in his outlook is incredible. He is due to start school in a month which i am finding a great challenge as he also has developmental delays and is still unable to be toilet trained due to his low muscle tone.. I have photos of Ethan before and afetr his corrective eye surgery that i would love to share and i look forward to chatting with someone who knows what it is all about. lease contact me Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.