Things are going very fast now...!

[Guest guest]

Hello Group,

Our granddaughter was born on April 2 this year, she has BPES. The familydoctor sent them ( and her parents) to the local Hospital here in Purmerend (80.000 inh.) - The Netherlands. Two eye-specialists looked at her and concluded that this was far above their expertise and they sent them to Vrije Universiteit Ziekenhuis Amsterdam (Free University Hospital). We went there Tuesday. Three Eye specialists examined and their conclusion was that the eye itself looked good (Iris - retina). For eye development reasons they recommended direct action and we were sent to the plastic surgery dep. Two plastic surgeons looked at her, they contacted a specialist in eyelid correction with great experience in this field and together with a couple of eye specialists and an anaestologist. The result of their meeting was an concrete conclusion "operation asap". It is scheduled for May 12. Both parents and grandparents are very happy with the way the diagnoses/conclusion/decission was made. Í keep you all informed. Maybee I can post some pictures in the album so we all can see the development but I have to find out how this works.

Best Regards,

Dolph Heideman