Thank you for responding so quickly

[Guest guest]

I would like to thank you all for responding so quickly. It is very

hard to find anything out about this. When Ruth was born no one could

tell us why she couldnt open her eyes. The pediatricians had no idea.

They sent us to adult eye doctors first who didnt know what they were

supposed to do with her. They sent us to a doctor from childrens

hospital who knew right away. We also went to a genetics clinic where

Ruth was diagnosed with BPES. Her eye doctor is concerned with her

eyes not opening enough for her pupils to be fully uncovered. She is

scheduled for surgery on May 11. My husband and I just are not sure

how we feel. We don't want her to start to lose vision but we are

nervous about her having surgery so young. Does anyone know if there

is alot of scarring from the surgery. Will she be uncomfortable for

long? We think she is beautiful just the way she is but don't want to

risk her vision. I posted some pictures of her. Thank you all

again. Jill