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In a message dated 10/26/00 11:16:14 AM Eastern Daylight Time,

snakedancerr@... writes:

<< Your worst problem is your daughter's trust of conventional

medicine............if you don't address that problem, it will come back to

haunt time and again..... >>

Hi ,

It has come back to haunt me - over and over again. I convinced my daughter

that vaccines are harmful but how do I convince her husband who has his own

beliefs without being a typical interfering mother-in-law (how I hate the

sound of that). Everytime they take the baby for her well-visits, I fear

that they will be bullied by the doctor to get her the shots. Their

pediatrician told them in the beginning that if they refuse the vaccinations,

they should " find another doctor " and that he wouldn't treat the baby. They

got her the first shot but agreed to hold off until she has developed her own

immune system at least (the best comprimise they could give me for now).

This particular subject is important to me because I am a member of the NJ

Chapter of Parents for Freedom of Vaccination Choice and have volumes of

information on the subject. It wouldn't surprise me if her current problem

is vaccine related but I pray it isn't.

I never thought of the foot shaker to strengthen those little muscles - I'll

have to give it a try.

Thanks,

Dotsie

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In a message dated 10/26/00 3:27:56 PM Eastern Daylight Time,

ruby@... writes:

<< The side effects that are direct and

indirect from the vaccines are permenant, and sometimes lethal. I feel I'd

rather take my chances on a healthy immune system, than a compromised one.

>>

Hi ,

In 1987, I had my first bout with EBV and was sitting in the office of Dr.

Berger in Manhattan who, at the time, was giving mega dose Vitamin C IV

therapy, which by the way helped in 5 treatments. I remember looking at his

other patients getting the same treatment who looked so sick and I wondered

what the common denominator could be to make these people so ill with these

various " new " diseases that were unheard of before. I was convinced then

that it was the vaccinations because my generation was the first to be

vaccinated en masse. That was 1987....now I know that vaccinations are

only a small part of the big picture because our immune systems are being

bombarded every day from all different directions.

We have no way to determine what problems the untold millions of people will

have that were exposed to the simian (monkey) viral contaminated polio

vaccine that was given to children between 1955 and 1961. I remember as a

child being led into the school auditorium where there was a big table with

sugar cubes with the red dot in the middle that contained the vaccine. Being

the cut up that I was, I proceeded to go back on the line again and again to

get more " sugar " because it tasted so good (and because somebody dared me).

I think I remember them coming to the school a few times that year. The next

year, they gave a shot and that time I was hiding in the back of the

line......

With that said, if anyone would like to do more reading up on the subject or

if a letter of exemption is needed for school let me know.

If all else fails, I like the idea of a vaccine remedy. Marilyn on this list

told me that she had a homeopathic doctor give the vaccination to her child

which took care of the problem with the school and she never needed an

exemption letter.

Dotsie

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Dotsie,

That is a hard position to be in. I feel for you.

Have you shown him the research you have in multitude of books that show the

dangers of vaccinations, and the implications for major diseases that

researchers

are directly linking with different vaccine's? I think if he could see it for

himself he may be hesitate enough to think it through, rather than " trust " the

doctor.... Dr. Mendehlson's books are great on this subject.... He sets up an

interesting anaylogy regarding the medical profession and a false church. The

common ground is trust. With spiritual issues and with medical ones, you can't

see what they are discussing.... or shooting in your arm. You are really

having

to place one's faith in THEM, their opinions, and their experience.

When a child gets 'most' of the diseases... that children get now days, they

ususally are over it within a week's time. The side effects that are direct and

indirect from the vaccines are permenant, and sometimes lethal. I feel I'd

rather take my chances on a healthy immune system, than a compromised one.

If they do insist on getting the shots, one can always give a vaccine " remedy "

to

counteract the hostile effects, 2 weeks prior, and then afterwards, to help.

DotsieBoo@... wrote:

> Hi ,

>

> <snip> how do I convince her husband who has his own

> beliefs without being a typical interfering mother-in-law (how I hate the

> sound of that). Everytime they take the baby for her well-visits, I fear

> that they will be bullied by the doctor to get her the shots. Their

> pediatrician told them in the beginning that if they refuse the vaccinations,

> they should " find another doctor " and that he wouldn't treat the baby. They

> got her the first shot but agreed to hold off until she has developed her own

> immune system at least (the best comprimise they could give me for now).

> This particular subject is important to me because I am a member of the NJ

> Chapter of Parents for Freedom of Vaccination Choice and have volumes of

> information on the subject. It wouldn't surprise me if her current problem

> is vaccine related but I pray it isn't.

A good multi mineral may help as well. I feel the Vanadium mineral is an

important one to have in the blend for building muscle strength...

> I never thought of the foot shaker to strengthen those little muscles - I'll

> have to give it a try.

> Thanks,

> Dotsie

--

Health, Hope, Joy & Healing :

May you Prosper, even as your Soul Prospers 3 2

Email advice is not a substitute for medical treatment.

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In a message dated 10/31/00 11:52:08 PM Eastern Standard Time,

Ritz3131@... writes:

<< I have not had time to read all these posts but I believe there was a

child

(baby) with health problems. Could it be due to a vaccine?

>>

Hi Christy,

It was my granddaughter who doesn't use her right hand. She is having an MRI

tomorrow (very nervous grandma because they have to put her to sleep for the

procedure) and when I hear the results, I will know for sure. It could be

the vaccination because she has had one round of shots - I pray it isn't. I

will keep everyone posted.

Thanks,

Dotsie

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  • 3 years later...
Guest guest

Dear all,

First of all I am not an English native speaker so please forgive me if I use a wrong phrase or word.

In 1972 our son was born and he had, what we know now, bleph. We have visited half a dozen medics without succes and even without telling us what our son had. Most of them told us it is these one-in-a-million chances to have something like that. It does not occur in both mine and my wifes family.

Finally he has had surgery by an eye specialist at Leiden University Hospital when he was 2yr. The main reason was that he always bowd back his head in order to see proper and there was a danger of damaging his spine in the neck area. This operation was, as we know now more or less unnecesary .

By coincidence we met a plastic surger and he advised us to operate (the boy was 12 yr). The operation was performed very wel everybody happy. Still we had no idea about BLEP, the word was never mentioned by this professor.

Now 3 weeks ago our granddaughter was born and after a few days we, my wife and I, felt that history repeated itself, she has the same "looks" as our son had in that age. After swimming around in the internet for a couple of hours, for the first time I learned about blepharophimosis! Looking at the archive of this group I learned a lot. So after 32 years, we where able to tell our son, and his wife, what was going on!

Now they are in the medical proces familydoctor-->Eye Specialist local hospital--> eye specialist University Hospital Amsterdam-->??? We'll have to wait and see what the profis tell us but fortunately this time we are armed whit BPES knowledge based, among others, on your experiences and willingness to share them with others. We thank you all for that.

Best regards,

Adolph J. Heideman

Purmerend - The Netherlands

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  • 3 years later...
Guest guest

I have always been told by my many docs that this is a hereditary disease. I think that if she has asthma and polyps there is a very good chance that Samters is what she has. At least you are well educated to the things she can do. I have never been told or read the typical age for onset. I do recall reading that for many, the onset is around age 30 or later. However, that doesn't mean you couldn't develop the symptoms as a child. Ot <sandraobriant@...> wrote: Hi, I just heard about this yesterday am trying to figure out if Samters might be what my granddaughter has. She is 12 years old and is going to have her 7th surgery for sinus polyps in two weeks. Her first surgery was when she was 3 y.o. She has asthma but I am not sure if she has a sensitivity to aspirin. We are unaware of it if that is the case. Do children have Samter's? Do any of you have any suggestions as to what to try? She has had allergy shots and has done the nettie pot irrigation. She is becoming very discouraged and depressed. Thanks Never miss a thing. Make your homepage.

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Guest guest

My little niece who is 6 years old has had asthma and allergies for a few years

now. My sister

just informed me that a while ago she gave her an advil and wheazed. This of

course

concerned me and I recently muscle tested her for aspirin allergy and she tested

positive to

the aspirin allergy. I am very upset to see my little niece going down my same

path. But we

are the only ones in our family with this. laura

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