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Kris:

I can tell you that our experience with Kutapressin has been good overall.

When first starting the shots you give them once a day for 30 days, the next

60 days are every other day and from then on usually three times a week.

When we first gave my daughter her shots, she ran away from home three

times. On one hand I almost lost my mind, but on the other hand her world

had gotten much bigger. She was testing her limits and needed to learn

about safety which she did. After putting locks on the doors, alerting the

neighbors, alerting the local police (picture, fingerprints and background)

and trying to constantly keep an eye on her, she has never done this again.

This was the scariest lesson we could ever learn, but I looked at it in a

positive way that she was growing up. Dr. G said it was like a two or three

year old trying to get out the front screen door, but they couldn't reach

the latch. didn't have that problem. Right now after almost 16

months on Kutapressin, we may back off and see how she does without it. I

don't want to change anything right now because we are doing pretty good.

Hope this helps.

jill

developmental delays

> Hi there,

> I am excited about joining this group! I am looking for parents

> whose children do not have a diagnosis of autism but have been

> following the protocol.

>

> My son has been delayed from birth. And after numerous evaluations

> (developmental peds, neuros, genetics, endocronolgist, etc.)the only

> thing ever diagnosed has been delayed bone growth and sensory

> integration dysfunction. A few of the therapists we have worked with

> past and present feel he has autistic traits....needless to say we

> were recommended to DR. G and have seen him since Oct. 2000.

>

> Our present meds include: Famvir and Nizorl and Dr. G's diet! He is

> now suggesting Kutapressin! I am completely distraught about having

> to give my son an injection! HELP! Has anyone found this drug to be

> helpful?? What about side effects??

>

> So far, we really feel like the meds have not made much of a

> difference??? Nothing has seemed to help his obsession with

> mechanical things (our worst problem). So far, we are pleased with

> his rapid language skills and his happiness, eye contact and play

> with us! The obsessions are holding him back from gaining even more

> progress!

>

> I would appreciate anyones feedback and thanks in advance!

> a

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

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Guest guest

Both 9 year old ASD daughter and I (CFS) are taking Kutapressin ijections and

they have boodted our immune systems substantially.

Tina

n a message dated 7/6/01 8:17:34 PM Pacific Daylight Time, KrisKerz@...

writes:

> Our present meds include: Famvir and Nizorl and Dr. G's diet! He is

> now suggesting Kutapressin! I am completely distraught about having

> to give my son an injection! HELP! Has anyone found this drug to be

> helpful?? What about side effects??

>

>

Tina M. Hendrix

Cure2000@...

President, Coalition, Northern California

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

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  • 4 months later...

Hi Noelle,

My son has had gross and fine motor problems. He's also extremely smart and

highly verbal. I guess he doesn't fit that hypothesis.

The symptoms our children manifest depend on the areas of the brain that are

off. Unless there is evidence of permanent damage.....it's functional

damage. When you restore their brain function they are able to develop the

skills. It may take some rehabilitation, but with a brain working properly

the skills will develop.

Cheryl

PARENTS COALITION-CA

>From: " & Noelle Bender " <faijcb@...>

>Reply-

> " nids " < >, " ws "

><ws >

>Subject: developmental delays

>Date: Fri, 23 Nov 2001 16:30:47 -0600

>

>Every time I read about this, I get that sick feeling in my stomach. Maybe

>someone can respond. I remember reading when we first thought

>might have autism that if kids also were delayed with their gross motor

>milestones that they were probably mentally retarded as well as autistic.

>I always tell myself that's not true in our case. He's so smart. His immune

>system issues must have caused this. (WE are patients of Dr. Goldberg's).

>Then recently I read something about this again. I wish I knew so I could

>be realistic about what the future might hold. Is is always true that

>physical delays indicate mental retardation? Any thoughts?.... Thanks.

>-Noelle

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Hi Noelle,

Every child is so different that it is difficult to categorize them as

" if______, then_____ " .

Same as for the NT child. But regarding what you read, my 3 year old ASD son

has significant fine and gross motor delays and I would have to describe him

mentally as gifted, definitely hperlexic as he site reads and is sounding out

words. I would be for giving all kids the benefit of the doubt until proven

otherwise, and then some. The human body and mind, especially a child's, is

very resilient, pliable, and adaptive. Hope this helps. Also, with my 2 year

old NT daughter, I still don't know what the future holds, but I have high hopes

for both of my kids.

Anne

From: " & Noelle Bender " <faijcb@...

Every time I read about this, I get that sick feeling in my stomach. Maybe

>someone can respond. I remember reading when we first thought

>might have autism that if kids also were delayed with their gross motor

>milestones that they were probably mentally retarded as well as autistic.

>I always tell myself that's not true in our case. He's so smart. His immune

>system issues must have caused this. (WE are patients of Dr. Goldberg's).

>Then recently I read something about this again. I wish I knew so I could

>be realistic about what the future might hold. Is it always true that

>physical delays indicate mental retardation? Any thoughts?.... Thanks.

>-Noelle

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  • 10 months later...

I have a question...does tort always cause gross developmental delays? B/c

the cranial facial dr and Charlotte at CT both agree that has or had

tort and with the pictures Cranial Tech took before he got his helmet..he did

have a slight tilt...but he is doing everything on time or early. He sat up

on his own at around 6 months. He started crawling at about 7 months. He's

now standing and walking while holding on to the furniture which he started

at 8 months..and he's now 8 1/2 months. He can turn his head both ways...he

used to pull up his shoulder a little when looking to the left..but i don't

notice him doing that anymore and i don't notice a tilt..but then i didn't

really notice it before either.

Also, no one ever recommended PT for him....the cranial dr gave us some

exercises to do with each diaper change..but that's it. And i have to admit

i got very lazy doing those exercises....and i'm not sure if his tort is

resolved or not. Does everyone with tort go to PT?

Mom to

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Thanks ,

Next time i go to the dr i will mention that to her and see if she can refer me to a PT to see what they say. I will also ask Charlotte at CT what she thinks...if she thinks he should go to PT. I would assume she might know since she deals with a lot of babies with tort.

Mom to

In a message dated 10/7/2002 10:37:25 AM Eastern Daylight Time, xtinaherp@... writes:

-

Vivian does go to PT and OT, as do most tort babies.

Her tort used to be really bad so she does have gross

delays. Many do, but not all tort babies have delays.

As you said, is not experiencing any delays.

I would keep up with the stretches though, and ask

your ped if maybe he should at least be evaluated by a

PT. The tort can reappear as the child learns new

skills, and walking can be a big issue. IF you get an

eval that will put you at rest and the PT will tell

you what you need to know and what to look for.

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Hi ,

My daughter too has developmental delays. She is delayed in her fine

and gross motor skills. I don't know and no one can tell me if the

tort she had and the plagio she still has, have anything to do with

it. Early Intervention comes to my house twice a week and gives her

physical therapy. It has helped her A LOT. She didn't sit up w/o

support until she was 9-10 months old. I saw such an improvement in

her in just 3 weeks of the PT. She is now 14 months and is starting

to walk! She does more and more everyday. I don't think this is going

to have any affect on her as she gets older. At least I hope not. How

old is Lukas now? Have you mentioned to your doctor about Lukas still

clenching his fists?

> Lukas has been tested and found to have delays in speech, physical,

and occupational. Does anyone else have a baby that was found to be

delayed. We are receiving therapy and it seems to be helping. I just

wanted to know if it was common for babies with plagio to have dev.

delays or not. There say that Lucas's tort is not all that pronounced

and should not be the cause. I can really see know that he does favor

one side, the right. Also he always keeps his hands clenched tight.

What does this mean has far as delays on down the road, like in

school etc. I am so glad I followed my mother instinct and pushed on

getting him tested. Everyone kept trying to tell me he was fine. I

knew that was not the case though. I am so thankful I persisted and

he is making great progress.

>

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,

Wow..we definitely have a similar situation. And i don't know who to believe..lol. I have to say that i really don't see a tilt with ...and he seems to be fine...but then i don't want to take the chance that it will get worse and i didn't do the right thing for him. My husband thinks that is fine and doesn't have tort...b/c he can do everything fine. We both did the exercises for a while...but we both have pretty much slacked off in doing them. And last time we went to the cranial facial dr (the one that gave us the exercises to do) he had look to the left and said that he is doing it fine...and i didn't think at the time to ask him if we are supposed to continue with the exercises. I know it doesn't hurt to do them..if anythjing they help..but he doesn't like it when we do the exercises..and i just figure if he is ok why make him upset for no reason..but then part of me is like..what if it gets worse and i thought nothing was wrong and so i made it worse...so i don't know. I guess i'll talk to the dr next time and see what she says...

Mom to justin

In a message dated 10/7/2002 12:05:40 PM Eastern Daylight Time, tkbel@... writes:

-

I have had the same questions before. We are in a very similar

situation. My son is 6.5 months old and has mild tort. He

has a slight tilt but full ROM, and has been reaching his milestones

on time or early. We too were given stretches to do by the plastic

surgeon who prescribed his STARband. I was not totally comfortable

with doing this all myself, so I asked his ped if we should have a

referral to see a PT, and he said no. He even went as far as to

say "it will work itself out, he does his own PT with his everyday

activities, it is nothing to worry about", so he did not even see the

value in continuing the at-home stretches. I was very surprised at

his attitude, since he was the one who recommended the band for

's plagio, and was very knowledgable about that. I just don't

know who to believe... are the stretches necessary or not? I know

that they can't hurt so we still do them, but like you, we are not

fully compliant with the recommended number of times per day. I know

that this really did not answer any of your questions, but I thought

I would just share our similar situations.

,

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1. You cannot tell if a child has torticolis from a photograph.

2. Torticolis itself has no reported connection to any specific developmental delays.

3. Do not get "lazy" doing the stretches then ask about needing to go to P.T. If you cannot do it yourself do not expect an insurance company to pay for a professional to do it for you. You were given "some exercises to do...but that's it" ... there isn't anything else!!! Who is the boss in this situation? If you cannot deal with this now, how do you expect to parent your child in the future? Relax, be confident, be firm yet gentle and know you are doing the best thing for your child. He will thank you in many subtle ways as he grows to be a more healthy human being.

Re: Re: developmental delays

I have a question...does tort always cause gross developmental delays? B/c the cranial facial dr and Charlotte at CT both agree that has or had tort and with the pictures Cranial Tech took before he got his helmet..he did have a slight tilt...but he is doing everything on time or early. He sat up on his own at around 6 months. He started crawling at about 7 months. He's now standing and walking while holding on to the furniture which he started at 8 months..and he's now 8 1/2 months. He can turn his head both ways...he used to pull up his shoulder a little when looking to the left..but i don't notice him doing that anymore and i don't notice a tilt..but then i didn't really notice it before either. Also, no one ever recommended PT for him....the cranial dr gave us some exercises to do with each diaper change..but that's it. And i have to admit i got very lazy doing those exercises....and i'm not sure if his tort is resolved or not. Does everyone with tort go to PT? Mom to For more plagio info

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Hi ,

Welcome to the group! My son also had tort, dx at 2 months. Torticollis can

cause delays for some tort kids, mostly due to the fact that they feel off

balance. The balance problem can play a roll in crawling, sitting and

walking. The SCM muscle is very responsible for balance, and if one side is

tighter, it is essentially pulling one side up, creating a shift in balance.

Our son would pull up his shoulder to compensate, other children might use

their hips, you'll know which because the arm will be higher, the shoulder,

rib cage or the hip. You can work on this by pulling that right side of

Lucas in a downward motion, with light massage- we would use baby oil and

just gently start from the shoulder and work it down. Also do this with the

hip if that's the case. With the arm being clenched, try to make him work

that arm by making him reach up high with toys, make sure that the tort arm

gets the toy in the beginning so you can start working that side, but don't

ignore the other side either. (and I would massage the hands, fingers too- I

really believe massage helped in conjunction with agressive pt). Tummy time

will help strengthen those neck muscles, and its so important, most can't

stand it, but work up your tummy time slowly and soon Lucas will get better

at it. Also, make him turn towards the direction of the tort as much as

possible, use bubbles, videos, whatever it takes to make him turn that way.

One other trick for balance, I used to sit on the floor and put

between my legs, facing the tv, and just rock back and forth on butt cheek to

butt cheek- I really believe this helped in him sitting up by 5 months. I

feel this helped give him the " sense " that it was ok to be on that tort side,

when the body is raised on that side, I feel it must be that they don't feel

balanced enough to try using that side, and letting them feel what its like

to be on that tort side, will help, imo! If you haven't already, check out

www.torticolliskids for more great tips and advice. Good

luck and please keep us posted! Your a great mom to be so pro-active despite

all those around you telling you your seeing things (I was told the same),

and Lucas is a lucky little boy to have a mom like you!

' Mom (tort dx @ 2 months, pt from 3-9/10 months, DOC grad 5-8

months)

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In a message dated 10/7/2002 10:19:49 AM Eastern Daylight Time, Av@... writes:

I have a question...does tort always cause gross developmental delays?

,

Tort doesn't always cause delays, but I think it depends on what's going on. I was lucky in that my pt noticed ' posture was already starting to shift, his rib cage was noticeably higher on his tort side. We were very proactive in working with that, and he showed no delays but was ahead of his milestones. He sat up at 5 mnths, crawled at 6 and started walking by 10 mnths. Not all tort babies are sent to pt, some Doctors prescribe the exercises as yours has, but its a good idea to have a pt help out. We only had professional pt 2x a week, 1/2 hour sessions, so the brunt of the work we did ourselves, but we still learned quite a few tricks from our pt that we may not have learned on our own. Not to mention, it gives mom and dad a break! It sounds like your son is doing great, I would just keep monitoring the tort, and for good measure, keep up the stretches as much as possible. You really want to watch the tort until they are 2 yrs old, only because milestones like walking can sometimes revert them back to the tilt, which may allow the muscle to tighten if that posture is maintained. Good luck!

' Mom

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In a message dated 10/7/2002 12:05:39 PM Eastern Daylight Time, tkbel@... writes:

.. I just don't

know who to believe... are the stretches necessary or not? I know

that they can't hurt so we still do them, but like you, we are not

fully compliant with the recommended number of times per da

,

I just want to let you know that there have been a few members that were told the same thing, only to be put back into pt later, because the tort became an issue again. I think your best bet is to continue with the stretches as much as possible. I was told to do them 15x a day, there was no way I could do that with working full-time, etc. I was so stressed over this that I wanted to quit my job and run away with my son to just stretch him all the time- thank God for the tort Board, they calmed me down and gave me perspective. We would stretch him nightly, massage him nightly, and 2x a week pt, and I thought it was never enough, but so much at the same time. I was exhausted!!! But, we reached resolve, and my son was severe. So do your best, even if you can only do a certain amount, whatever your doing, it will help! Your a great mom and your going to make it happen! Good luck to you and you'll get there, trust me!

' Mom

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In a message dated 10/7/2002 1:16:44 PM Eastern Daylight Time, Av@... writes:

I know it doesn't hurt to do them..if anythjing they help..but he doesn't like it when we do the exercises..and i just figure if he is ok why make him upset for no reason..but then part of me is like..what if it gets worse and i thought nothing

,

Try working with while he's sleeping if possible. was the same way, but the minute he conked out, that's when we took over! If he fidgeted a little, we would stop, pat his bottom, and back to work. We were able to do the deep stretches really well this way, and soon we could do them at pt while he was awake with less resistance, because the muscle was already stretching out. Good luck!

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In a message dated 10/8/2002 1:54:25 AM Eastern Daylight Time, tg57@... writes:

If you cannot deal with this now, how do you expect to parent your child in the future?

Who is this? I never said that i cannot deal with this now...

I said that i'm not sure if he still has tort or not. No one referred me to a PT...and i was told his tort was very mild..and the cranial dr last time said that it basically was resolved....my question was why was i not referred to a PT..not that i can't deal with this. I'm not sure who wrote this to me...or if it was directed to me..but it had my post on the bottom of this one..so i'm assuming it was to me. Please don't question my ability as a parent...

Mom to

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, I have no idea who they are either. Never seen the email addy before. I agree that whoever they are could have been a little nicer and maybe at least signed his or her name. That was pretty harsh. Don't worry, . If you weren't a fabulous parent you wouldn't be here in the first place. : )

Kellie

In a message dated 10/8/2002 6:48:54 AM Pacific Daylight Time, Av@... writes:

Who is this? I never said that i cannot deal with this now...

I said that i'm not sure if he still has tort or not. No one referred me to a PT...and i was told his tort was very mild..and the cranial dr last time said that it basically was resolved....my question was why was i not referred to a PT..not that i can't deal with this. I'm not sure who wrote this to me...or if it was directed to me..but it had my post on the bottom of this one..so i'm assuming it was to me. Please don't question my ability as a parent...

Mom to

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Thanks Kellie. Yea..i was thinking that too..if you are going to write a post like that..have enough guts to sign your name to it.

I was looking for the kind of info that Taryn and and others have offered..not telling me about my parenting skills. Questioning someone's parenting skills will never get them to listen to the advice...all I see is the negative. Posts like the one just sent me...got the message across without adding insults.

I didn't just ignore the plagio and tort...so therefore i am dealing with it fine. I got a helmet as fast as i could...i did the exercises at home that the dr gave me....i said that i am not doing the exercises as often as i should..but only after the dr told me that he is better....not before. I know i should still do them..but that does not make me not able to deal with this.

Anyway, thanks Kellie!!

In a message dated 10/8/2002 9:53:32 AM Eastern Daylight Time, Kelliesmith@... writes:

, I have no idea who they are either. Never seen the email addy before. I agree that whoever they are could have been a little nicer and maybe at least signed his or her name. That was pretty harsh. Don't worry, . If you weren't a fabulous parent you wouldn't be here in the first place. : )

Kellie

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Thanks !! I will definitely talk to the dr about PT!! Thanks!!

In a message dated 10/8/2002 9:36:54 AM Eastern Daylight Time, rmanias@... writes:

-

Torticollis doesn't always cause delays.

My dr also told me to do exercies with diaper changes but we went to

PT too. We went much less frequently than and . We

went once a week for 2 weeks and then every other week and then once

a month. It might not be a bad idea to ask for a referral to a PT.

The PT can show you many more exercises than the dr. Make sure you

get a PT who is experienced in torticollis. The first one we had

discharged Dane twice saying he was resolved. When he got to his

2nd PT, she showed me how it was quite apparent that it was indeed

not resolved.

I know what you mean about looking back at pictures. I have a

friend who emailed me pictures of her 4 mo son. He was tilting in

all 6 pictures. and I were emailing each other. I was

wondering if I should say something. Well, he did have tort and the

dr totally missed it during the 2 mo and 4 mo well check. Thank God

she emailed me, of all people (hadn't seen or talked to her in

years) and I told her to go get it checked out by someone else.

You're doing a great job!

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Thanks . That made a lot of sense. Do you think Charlotte from Cranial tech would be able to tell me if he still has tort and if she thinks i should take him to PT?

In a message dated 10/8/2002 9:50:59 AM Eastern Daylight Time, rella1234@... writes:

,

Tort doesn't always cause delays, but I think it depends on what's going on. I was lucky in that my pt noticed ' posture was already starting to shift, his rib cage was noticeably higher on his tort side. We were very proactive in working with that, and he showed no delays but was ahead of his milestones. He sat up at 5 mnths, crawled at 6 and started walking by 10 mnths. Not all tort babies are sent to pt, some Doctors prescribe the exercises as yours has, but its a good idea to have a pt help out. We only had professional pt 2x a week, 1/2 hour sessions, so the brunt of the work we did ourselves, but we still learned quite a few tricks from our pt that we may not have learned on our own. Not to mention, it gives mom and dad a break! It sounds like your son is doing great, I would just keep monitoring the tort, and for good measure, keep up the stretches as much as possible. You really want to watch the tort until they are 2 yrs old, only because milestones like walking can sometimes revert them back to the tilt, which may allow the muscle to tighten if that posture is maintained. Good luck!

' Mom

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,

If it makes you feel better, my son was told he had mild tort, but no one ever told me to do any exercises at all. I did a few on my own after I found this group, but that's it. My son now has full ROM and the tort pretty much resolved itself once he started sitting up and crawling.

When it comes to tort, you can't go wrong with anything tells you. She is the tort queen! You're doing an awesome job! Keep it up.

Kellie

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,

Hmm...and he didn't wake up? I'll try that...sounds like a good idea..but i think would wake up..lol.

In a message dated 10/8/2002 10:00:52 AM Eastern Daylight Time, rella1234@... writes:

,

Try working with while he's sleeping if possible. was the same way, but the minute he conked out, that's when we took over! If he fidgeted a little, we would stop, pat his bottom, and back to work. We were able to do the deep stretches really well this way, and soon we could do them at pt while he was awake with less resistance, because the muscle was already stretching out. Good luck!

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I wanted to address some of these answers:

.. You cannot tell if a child has torticolis from a photograph.

This is not true. The tilting posture of a child, usually when the ear is closer to the shoulder, is a tell tale sign of torticollis. While it is not an official dx, if your child shows a tilt in almost all situations, its time to ask your Doctor about torticollis. However, some torticollis children do not have a tilt, so its not proof positive that your child doesn't have tort if there is no tilt. But, you can get an idea if your child is not able to rotate fully in one direction, this is also an indication of tort.

2. Torticolis itself has no reported connection to any specific developmental delays.

This is also not true. Torticollis has been documented to cause gross motor delays, especially when parts of the body are directly effected, i.e., the shoulder is raised, the hip is raised, all due to the tight SCM muscle directly causing imbalance, therefore the shifting or compensating of pulling up the tort side. Many children with tort have the "c" shaping (hip pulled up) and the shoulder raised- this causes the imbalance that can directly affect their ability to crawl, sit up, or walk. If one side is raised, there is no equal distribution of weight, therefore causing imbalance, and a real setback in their ability to master milestones on target.

3. Do not get "lazy" doing the stretches then ask about needing to go to P.T. If you cannot do it yourself do not expect an insurance company to pay for a professional to do it for you. You were given "some exercises to do...but that's it" ... there isn't anything else!!! Who is the boss in this situation?

I agree that you cannot get "lazy" about doing stretches. It's very important to work with your child, the earlier the better. However, a pt is a trained professional, with many alternative stretches/ therapies, that work well in conjunction with home therapy. My pt used craniosacral therapy, and its a relaxing technique that a Doctor would not have showed me. This helped dissipate my son's huge hematoma (blood mass- trauma induced) and also relaxed him prior to stretching. If I felt the need to see a pt, that is my right as a client of the insurance industry, not my Doctors right, but mine, and if I ask for a referral, I better damn well get one or I am switching Doctors!!!!!!!!! If your Doctor wants to sit idly by and blame you for not knowing what to do, and punish you by not letting you seek out professional help by a pt, give that Doctor a piece of your mind, and throw your money to a paid professional that cares about the patient's rights, your child!!!

' Mom

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In a message dated 10/8/2002 10:16:02 AM Eastern Daylight Time, Kelliesmith@... writes:

My son now has full ROM and the tort pretty much resolved itself once he started sitting up and crawling.

When it comes to tort, you can't go wrong with anything tells you. She is the tort queen! You're doing an awesome job! Keep it up.

Thanks Kellie.... :) I think that's what happened with ....but i'll find out :)

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Thank you Gail. This is such a supportive group that i was so shocked to see a post like that. Thank you for standing up for me too...

In a message dated 10/8/2002 10:32:18 AM Eastern Daylight Time, momofivftwins@... writes:

,

I want to add my name to those already standing up for you. I was very disturbed by those earlier posts, but didn't quite know how to respond to them. I am like you. I don't do Sam's exercises much anymore, but you can be that as soon as I see the slightest tilt or side favoring that I'm all over it. You are doing a great job, and the fact that you are willing to ask questions and ask for help is a sure sign of your excellent qualifications as a parent. Keep up the good work.

Gail

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In a message dated 10/8/2002 9:53:27 AM Eastern Daylight Time, Kelliesmith@... writes:

Don't worry, . If you weren't a fabulous parent you wouldn't be here in the first place. : )

Very well said Kellie- we are here talking about plagio and in some cases tort because we do care, and we are concerned parents!

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In a message dated 10/8/2002 10:14:58 AM Eastern Daylight Time, Av@... writes:

Thanks . That made a lot of sense. Do you think Charlotte from Cranial tech would be able to tell me if he still has tort and if she thinks i should take him to PT?

,

It's worth a shot if its the easiest route for you to take before you can get a Doc's opinion- my CT was very familiar with tort, spotted it right off, and they told me that 80% of their patients have some degree of tort. I was at the hospital almost a year after graduation, saw someone from CT there, we talked and she said now they are giving all their parents stretching tips just as a precaution, it sure can't hurt, and many Doctors are letting their patients fall through the cracks and not dx when they should. Your doing a great job , it shows in your posts your concern for your little one, the questions that you have and the answers you are seeking, and I know that your son will be just fine because he's got one loving mommy looking out for his best interests! Great work mom, keep it up!

' Mom

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