Now its a flood!!! :)

[Guest guest]

Okay, y'all, I have permanently moved a box of Kleenex beside the

computer!! Your posts and the response is just overwhelming. I cannot

even begin to describe how each and every one of you has touched my

heart and opened my eyes. Its made me realize that my daughter is a

wonderful gift and no physical characteristic will change who she is

or how special she is to me. I know I need to be proud of who she is

and not let other peoples rudeness keep me and my daughter from

enjoying life. I have hidden her - I have to be brutally honest - I

have kept her from the outside world. At this stage, I had done so

much more with my son and daughter - play groups, swimming, etc. But

with Halle, I just wanted it to be us - safely tucked away in our

home.

Well - with your help, I know I can change my attitude about this. I

feel such a weight lifted already. We can do this!

I have one question - well no, that's a lie - I have a trillion

questions but one to ask right now...of the posts I've read, it seems

that the majority of surgeries have been done at a relatively young

age? Who determines this? Does it depend on the severity of BPES? Or

is it just up to individuals? If Halle's sight is not impaired, then

would it be better to wait? The only thing I keep thinking is that

the younger a child is, the less they will remember about the

surgery...is it more traumatic for them at later ages?

Well - again - thank you all. If I can help one person on this site

someday the way you have helped me, then I will be very happy!

Will chat soon,

Donna

PS ~ The pics of your children are beautiful. Its just so neat to see

other kids with this. Its like they are all Halle's siblings in some

way because they have this common characteristic!! Hugs!