Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Hi Ester The route to good advice is to ask your GP to refer your son to "Moorfields Eye Hospital", in London. The specialists at Moorfields will be able to examine your son, carry out tests and work out a treatment plan. They have seen many people with Blepharophimosis, ptosis, and epicanthus inversus. A few years ago I asked them how many people they see with these problems, they said about 1 person a week. So for them, they have lots of experience in this area. Your son deserves the best advice - I hope you can sort it out as soon as possible. Shireen London, England -----Original Message-----From: esterspain [mailto:esterspain@...]Sent: 13 October 2004 00:42blepharophimosis Subject: blepharophimosis My son is nearly two.My son has got ptosis on his left eye and in England we were told by the opthometrist that he has to wait till he is four to have anything done. So we went to Spain to have his eye test by an eyelid specialist. Yes there are specialist! He check his eye and told us his eyesight was perfect, but that his eye will NEVER get better and that corrective surgery was the only way. He said that, because there is a chance he could lose sight, he recomended surgery as soon as possible.How come two different countries recomend two different things? How come in England we get the flashinf cards and in Spain his eyesight was check up with different aparatus? Maybe I'm not very clever, but it doesn't make sense to me.HELP!!Ester Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2004 Report Share Posted October 13, 2004 Hi Ester, Does your son have blepharophimosis? or just ptosis of one of his eyes? My name is Leanne, we live in NZ, we have a beautiful 19 mth old son w/ blepharophimosis. We were told from the beginning that they would be doing surgery at about age 4+ the longer they wait the better the results, we just had his 18 mth check-up, and now they will probably do a temporary ptosis surgery at age 2, he has great eyesight, and doesn't tilt his head up to see, but because his top eyelid has no movement, the dr said he would benefit having this lift, then a permanent one when he is a bit older age 4ish, using his own fascia lata. You get so many different opinions from different Dr's around the world, but as long as your child is getting the best care for their particular situation, thats all that counts:) Talk soon Leanne and family. -- blepharophimosis My son is nearly two. My son has got ptosis on his left eye and in England we were told by the opthometrist that he has to wait till he is four to have anything done. So we went to Spain to have his eye test by an eyelid specialist. Yes there are specialist! He check his eye and told us his eyesight was perfect, but that his eye will NEVER get better and that corrective surgery was the only way. He said that, because there is a chance he could lose sight, he recomended surgery as soon as possible.How come two different countries recomend two different things? How come in England we get the flashinf cards and in Spain his eyesight was check up with different aparatus? Maybe I'm not very clever, but it doesn't make sense to me.HELP!!Ester Quote Link to comment Share on other sites More sharing options...
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