Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 Hi My name is Beth Gordon and I currently live in Northern Virginia, USA. I knew that I had several surgeriees for ptosis as a child but only since the birth of my daughter have I learned that I actually have BPES. Lily is 2 months old and has had 2 surgeries to put in slings. My father and grandfather both have BPES, although none of our siblings have it. I am interested in any information about the best treatment for our daughter. This group seems very positive and helpful. I have not undergone genetic counseling, would be interested to find out more about it. How could it help my family? I am also interested in meeting anyone living nearby, particularly with children. I was born in 1970 in Pittsburgh, PA and my surgeries were conducted at St. Francis Hospital by Dr. Weiser (now deceased). thank you and best to all Beth Gordon Quote Link to comment Share on other sites More sharing options...
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