New poll for blepharophimosis

[Guest guest]

Enter your vote today! A new poll has been created for the

blepharophimosis group:

Do the people in your family with BPES

exhibit any of the following

conditions? If you have more than one

person in the family with BPES, pls

feel free to take this survey one time

for each person.

(please check all that apply);

o Developmental delay

o Ear malformation

o Mental retardation

o Underdeveloped bridge of nose

o Facial deformity

o Near/farsightedness

o Microcephaly (head is smaller than average)

o Amblyopia (lazy eye)

o Tear duct problems (poor drainage)

o Eczema

o Sensory impairment (problems with sight/smell/hearing/touch/taste)

o Underdeveloped musculature

o ADD (Attention Deficit Disorder)

o No other issues, save ptosis (drooping eyelids)

o Other

To vote, please visit the following web page:

blepharophimosis/surveys?id=1505163

Note: Please do not reply to this message. Poll votes are

not collected via email. To vote, you must go to the

web site listed above.

Thanks!

[Guest guest]

Thanks, Micah. I think the poll is interesting and helpful. I did the research on the web and found the same things you did, conflicting information.

Beth

Micah Truman <micah_truman@...> wrote:

Sadly, we will have to stick with the poll as it is. We have 35 votesalready, and if we change the poll at all, the system will wipe out allprevious results.If possible, please simply tick 'other' for categories that do not fitwithin the existing framework.Should people wish to do an online survey with a bit more depth in thefuture, I would be happy to oblige. We should probably not do it on the network, as the polling system they have is fairly rudimentary. Ican create and host the survey through my company if people areinterested - one of the advantages to working in an online focusedmarket research company...Best, Micah-----Original Message-----From: lyndenhunter [mailto:lyndenhunter@...] Sent: Wednesday, November 17, 2004 10:45 PMblepharophimosis Subject:

blepharophimosis Re: New poll for blepharophimosis--- can we add a bit to the poll if we have things that we were told about our child that had anything to do with BPES?? for example i see you have that the head is smaller than average and i was told that in because of his (lynden's) BPES his head is bigger than averagethanks again tonikka and lyndenIn blepharophimosis , blepharophimosis wrote:> > > Enter your vote today! A new poll has been created for the > blepharophimosis group:> > Do the people in your family with BPES > exhibit any of the following > conditions? If you have more than one > person in the family with BPES, pls > feel free to take this survey one time > for each person.> (please check all that apply); > > o Developmental delay > o Ear

malformation > o Mental retardation > o Underdeveloped bridge of nose > o Facial deformity > o Near/farsightedness > o Microcephaly (head is smaller than average) > o Amblyopia (lazy eye) > o Tear duct problems (poor drainage) > o Eczema > o Sensory impairment (problems with sight/smell/hearing/touch/taste) > o Underdeveloped musculature > o ADD (Attention Deficit Disorder) > o No other issues, save ptosis (drooping eyelids) > o Other > > > To vote, please visit the following web page:> blepharophimosis/surveys?id=1505163 > > Note: Please do not reply to this message. Poll votes are

> not collected via email. To vote, you must go to the > web site listed above.> > Thanks!