Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 This is a message for all of us Kiwi's way over here in New Zealand! Rob and I are very much interested in meeting with others who have BPES or children with. We therefore would like to arrange a BPES Meeting for sometime in later 2005 and would like to know how many of you would be interested in attending. We understand that this will involve travel for most. We are also hoping to get the support of some Medical Personnel to meet with us also. We are happy to plan and arrange this but first need to know if others are interested in meeting besides just us. We feel this would be a great opportunity for us and our daughter and of course a benefit to all who attend including anyone in research. Please let us know of your interest. Regards Rob and (Parents of Alyssa with BPES) Quote Link to comment Share on other sites More sharing options...
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