Guest guest Posted August 28, 2001 Report Share Posted August 28, 2001 Thanks Kim! I look forward to getting to know you better. By the way my name is Heidi - I see everyone seems to use their names - it's friendlier anyway! Heidi >From: SimplyReliv@... >Reply- > >Subject: Re: [ ] Hi - I'm new here, just introducing myself >Date: Sat, 25 Aug 2001 09:13:44 EDT > >Hi, Steps! Welcome! > >Kim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 Hi Kim: Thanks for your kind words. It makes us feel so much better knowing we are not the only ones going through this with such a young child. It is really scary and you have to make decisions and you just want them to be right. So far so good for Darryl. We live right outside of Orlando in Apopka. If you are ever down this way just let us know, we would love to meet up with you. Have you posted a picture of Brock on this site? We are going to be posting some of Darryl as soon as we get a chance. Take care. Cheryl Our son Darryl has bpes, he is the only one with it in our family and > we have so many questions. He had his first surgery done when he was > 5 weeks old cause he couldn't open up his eyelids at all. He looked > like he was sleeping all the time and cried alot. Since the surgery > he is doing much better and is now 8 months old and needs to go in > and get an adjustment done cause his lids look low again. I was just > wandering if anyone from Florida is in this group? I'm also just > wondering if my husband and I are doing the correct thing for our > child, I just feel like were kinda in the dark and just going by what > our doctor tells us. We have a really wonderful surgeron and in his > 20 years or so of practice he has seen a few children with bpes but > Darryl is his youngest patient to date. I have read some of the > group talking about genetic testing. If we go see a genetic > counselor how can they help us? > Any information anyone feels like sending our way would be very much > appreciated. > I think this is a wonderful group with lots of great information and > look forward to being a part of it. > When we get time we will be posting pictures of our Darryl and his > other sister and brother as well. > Take care everyone. > Cheryl, , , Hollie & Darryl > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 And I hate " me too!! " messages, but what a wonderful shot! Bob > > Thanks Kim for sending in this picture of her fall AppleJack soap to use > for the Homepage. She has little cinnamon sticks tied on them. Cute! > And the kitty is a beauty too! > > Shaye > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.