Anushka - One Year Old on 28August2004 - Update

[Guest guest]

Dear All

I live in the UK and I am a new member to the group. It is most

interesting to read your stories regarding the surgeons comments

regarding surgery.

We have also been told that my son, , will not require any

surgery before he is three. He has 6 monthly vision checks and we

have been assured that his vision is fine.

It is reassuring to hear others experiences and that our surgeon is

giving us the correct information.

Kind Regards to you all

Donna

> >

> > Dear Friends,

> >

> > We have just now posted a photo of our daughter Anushka who

> > celebrated her first birthday recently.

> >

> > For the new members who have joined the group - Welcome!! We see

> that

> > more knowledgeable ones are already helping like they did for us

> when

> > we joined.

> >

> > We visited London last month on a holiday and took the

opportunity

> to

> > consult Mr Collin, apparently a recognized surgeon in

this

> > field and attached to Moorfield Eye Hospital. He has examined

her

> and

> > feels nothing needs to be done until she is 3 years old. He

> > recommends the first surgery to correct her epicantal fold (open

> her

> > eyes more) and 6 months later the ptosis correction.

> >

> > His report reads: Anushka has BPES with a marked bilateral

ptosis,

> > epicanthus inversus, telecanthus and narrowing of the horizontal

> > palpebral apertures. The ptosis is worse in the left eye, but on

> both

> > sides the eyelid level is clear of the pupillary axis.

> >

> > Anushka does not shed tears (how sad), but the Surgeon did not

seem

> > too much worried about this and feels that her eyes are moist

and

> > lubricated.

> >

> > He also asked us to visit an Orthoptist (Like many, a new name

to

> us)

> > which we did on the same day. This lady checked her eyes using

her

> > simple tools and flash cards (since traditional means are not

> > suitable for very young children). Her conclusion was that her

> > eyesight seems ok, astigmatism is not visible but since her left

> eye

> > droops more, we have been asked to patch up her right eye for up

to

> > 30 minutes a day. Like a sport, Anushka cooperates though she

has

> her

> > off-days.

> >

> > We have been asked to visit an eye specialist in our area to

check

> > her eyes every 6 months. Beyond that, nothing more to be done

but

> > wait (2 more years!!).

> >

> > Anushka is a very bright girl, intelligent, cute, lovable, funny

> and

> > growing up like all other active kids her age.

> >

> > Thank you Shireen for being there and nudging us to post a

message

> > about our trip to the Doctor. A bit late, but still done.

> >

> > Love to you all

> >

> > Lata & Deepak

> >

>