Guest guest Posted November 17, 2004 Report Share Posted November 17, 2004 Dear All, I’m getting frustrated. I’ve started going through all the materials online that I can, which outline the potential relationship between developmental delay and BPES. I have seen everything from no mention of the correlation of the two whatsoever, all the way through to one study which claimed 9 of 15 individuals with BPES suffered from mental retardation. Not exactly where how their patients were sourced, but this sounds fairly off base to me. My conclusion is that is it distinctly possible that we as a group probably have more information at our fingertips than many of the researchers whose materials I am (trying to) read. I am going to put a quick poll together, listing out all the various potential major features I have read that supposedly come with BPES. If you can, please take the survey – an email invite should be to you shortly. Results will be posted next to the survey, and will change as more people take it. I hope that this is of help as we all try to better understand BPES, as well as how we all have manifested the condition. All the best, Micah Quote Link to comment Share on other sites More sharing options...
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