Re: Thsnk you please please please read

[Guest guest]

I didn't know what I had had a name until a year ago when I was twelve. My aunt, my grandfather, and my father all have blepharophimosis. I wasn't teased very much. Just the odd comment. All I did was explain what I had and they stopped. How old Is your son. If you would like to write back e-mail me at: sweet_emi2002@...

Thank you <maryelisabethball@...> wrote:

All my life I felt like I was the only person in this entire world who had ths problem,and now my son. I found this website and saw all the pictures of this beautiful children and all i could do is cry. Its so nice to know that i'm not the only one. I have had many operations in my life to fix it and the doctors did i good job but i was so teased as a kid while i was going thru this in the early 80's. Maybe my son could meet someone like us besides me to with this again thank you

[Guest guest]

Hello , ,

When our son René was born in 1971 nobody ever told us (maybe they did not know) what he had. So two operations were done by an eye surgeon and practically no result. He sure was called names and teased at school but it was not such a big problem for him. He got hardenend as he says himself. By the time he was 12 we met a plastic surgeon and one of the best in the Netherlands. It took him one operation to lift up his nosebridge and to widen his two eyes. No further operation was necessary.

On april 2 this year our granddaughter was born and we recognised immediately what she had but this time we learned (via the internet) what bpes is. We mobilised the forces we knew and was operated when she was 6 weeks old. Today we visited the Academic Hospital in Amsterdam and her eye functions are working very well. Yet it is uncertain what the future plans could be, she is too young at the moment. I have uploaded some pics so you can see the process untill now (30 november 2004) Its Heideman.

Wishing you the best and regards,

Dolph Heideman

Re: blepharophimosis Thsnk you please please please read

I didn't know what I had had a name until a year ago when I was twelve. My aunt, my grandfather, and my father all have blepharophimosis. I wasn't teased very much. Just the odd comment. All I did was explain what I had and they stopped. How old Is your son. If you would like to write back e-mail me at: sweet_emi2002@...

Thank you <maryelisabethball@...> wrote:

All my life I felt like I was the only person in this entire world who had ths problem,and now my son. I found this website and saw all the pictures of this beautiful children and all i could do is cry. Its so nice to know that i'm not the only one. I have had many operations in my life to fix it and the doctors did i good job but i was so teased as a kid while i was going thru this in the early 80's. Maybe my son could meet someone like us besides me to with this again thank you