Re: Re: New to group/question

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Why ... Is it ever doc has different diagnoses. make sit so confusing for mom to decide what actually the best and who's actually right...... get confusing for me because i was told that she wont need to have her fascia put in.. if her slings now hold on and up for her.. so who's right and who's not.... am i doing what best for her or not~~ Every one on her goes through that .... Like when her next surgery is is when she 4 yr for her EPI fold and what exactly for .... she fine now~

Guess it gets frustrating to know when ARe you actually going to be done with all this surgery ... and just let them be~bethgordon03 <bethgordon03@...> wrote:

The silicon rods are placed so that he can open his eyes. Because of ptosis, the eyelids do not function correctly, the silicon rods help us open our eyes. My 7 month old daughter has them. When the child matures, permanent "slings" are put in using the child's own fascia harvested usually from their legs. I have slings using my own tissues from my forehead. My daughter will have the perm slings when she gets older. (4)The silicon slings can be removed (and will have to be, anyway) My daughter has already had some removed that didn't work properly. I cannot close my eyes completely, but my daughter can. Usually, the eyes adjust to the dryness. I think that people with BPES generally have drier eyes, anyway. We don't have the lid coverage of others. You can use ointment or gel. When he gets his permananent ptosis

repair with the fascia, you want to make sure this issue is addressed. Find a good oculoplastic surgeon. I hope this helps. Beth Gordon> > Hi Everyone,> > I just found this group and am very thankful! I have been trying to> read through some old posts to learn more. My husband and I have two> little girls, ages 2 & 4, who we adopted from South Korea as infants.> And we are currently adopting a little boy, Micah, who will be 3 in> April. Micah has bleph and waited a long time for a forever family> because of it. We saw his picture and video and knew instantly he was> our son. > > MUCH to our surprise, we received a call from Korea asking us if we> would like for them to do Micah's surgery BEFORE he came home. (We>

were shocked - this little boy waited three years for a family because> of bleph and now they were willing to do his surgery before we adopted> him.) We talked with many doctors and decided to have them do his> surgery there before he comes home. We thought Asian doctors would do> a better job of preserving the shape of his Asian eyes, and we were> told the medical care in South Korea is just as advanced as in the U.S.> > Well I just received a medical report on Friday and now am very> concerned. I will admit I do not understand everything in the report.> But from what I can tell they did a "Y-V medial canthoplasty", which> I was expecting. But they also put "silicone rod implants in his> eyebrows". Does anyone have any experience with this? My concern is> this - the report was written just one day after his discharge from>

the hospital and it says, "he cannot close his eyes completely while> sleeping due to the silicone in his forehead". What does that mean?!> Is this a "normal" side effect right after surgery or did they> over-correct? Any insight would be greatly appreciated!> > We are hoping to travel to bring Micah home sometime in April.> > April> Wife to Jon> Mommy to three little blessings from Korea:> Mira (4)> Misha (2)> Micah (almost 3) waiting to come home!