My baby boy Kai's story

[Guest guest]

When my baby still wasn't opening his eyes at 1 month, mother's

instinct told me there was something wrong. Yet, every time I brought

it up to his pediatrition, he told me nothing was wrong. I wasn't

satisified. By this time my son showed signs of tilting his head back

to see and raising his eyebrows. I took him to an eye specialist

immediately. The doc took one look at him and diagnosed him on the

spot. Blepharophimosis, he told my husband and I. I went into shock.

My perfect angel was not so perfect in the medical world. Were do we

go from here I asked. He referred us to the best eye surgeon. Dr.

Goldburg at the Jules stein Institute. This doctor was spotlighted on

the discovery channel doing the same surgery as my son will have. It

was a breath of relief knowing he will have the best. I refuse to

lie, I am angry that my son has to have this dibilating syndrome and

that he has to go through so much at such a young age. My heart weeps

for him because he doesn't understand why he can't see very well.

Does anyone else share my anger and frustration?

My beautiful son's momma,

Jenn