Guest guest Posted August 14, 2005 Report Share Posted August 14, 2005 Hi, my name is Karolin and Iam 29 years old. I was born with tbe Blepharophimosis Syndrome. All my life I have been told how rare this condition is and have never in all my doctors consultations and surgeory come across anyone with this condition until a couple of days ago. That is when I came across the website full of people with this condition. Growing up this website would have really come in handy. Anyhow... what I would like to know is that is there anyone who has this condition but neither parent or any relative known has the same condition. I am constantly told I am not adopted but still cannot understand where I got this gene from and now have passed it on to my two children. I really would like to chat to anyone that can help me. Quote Link to comment Share on other sites More sharing options...
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