Re: Re: Older ptosis (was: celine 19yr old english girl with condition!)

[Guest guest]

Hi ,

My name is Leanne, my husband and have 2 boy's, our first Tyler, 6 1/2 years old was born without bleph, but our 2nd son Ethan age 2 1/2

was? It does not run in our family so was a little surprised:) but definately all good:)

We are from NZ also, we live in Christchurch! How about you?

Ethan has had no surgeries as yet, He see's the opthalmologist once a year (Dr Weatherhead), and he has told us he want need to

do surgery on him until he is about 4-5 years old. He has never had a chin-up posture to see, just looks straight ahead, We have some pix of

him at the site, Ethan is the one wearing the pumpkin suit, there are two Ethans, actually the opther one is also from NZ as well!

Anyways, talk soon....and if you are from chch or somewhere close we could meet up?

Leanne and family.

-- blepharophimosis Re: Older ptosis (was: celine 19yr old english girl with condition!)

Hello older ptosis folks. I found this site last week and I'm

learning heaps and communicate by email to another here in New

Zealand.

I had my first ptosis op at 7years (its on the database)and

adjustment at 10 for streaming eyes. Mr Burns said to my Mum "well

you will really need to get her married off so recommend no further

ops" This kid never forgot those words. I am divorced like half of

the baby boomers out there and it does matter to me how I look and

always did. I am researching to find out what I can have done as the

2 plastic slings need adjustments now to even up my eyes. One has

always been too tight and the othr gave up years ago. My son won't

be going thru this as he had the bilateral lid muscle loop done -

he's lucky to have lids that work in unison - mine don't.

Would welcome emails and info from folks where ever. Best wishes -

Most reviled saying "The eyes are the windows to the soul"

Most loved " "Live the dream"

> > Hi Loka,

> >

> > > I've just discovered this group as well. I just became a member

> > > yesterday. I'm glad to hear that there are Bleph adults here. I

> > > literally stumbled across this site when I was doing a search

> > > for "ptosis." I'm 43, and I've had 3 surgeries as a child. The

> funny

> > > thing is that my doctor and surgeon never used the "bleph" word

> to

> > > me or my parents. I'm just wondering when this term came into

> being.

> > > And did my doctor, 40 years ago, have any knowledge of this

> > > condition? (Anyone else out there in this situation???)

> >

> > 40 years ago, when I was also having my surgeries (I'm 44), the

> > techniques to correct BPEI were pretty much still being worked

> out.

> > However, the scientific journal articles that I have from the 60s

> (and

> > the 50s, I think?) used the same terms that are used today - at

> least

> > for the individual symptoms (ptosis, blepharophimois, epicanthus

> > inversus) if not for the collective BPEI syndrome as a whole.

Like

> you,

> > my surgeon never named this thing. I had to specifically ask him

> (when I

> > was in my 20s) "What is this called?", and then he wrote it down

> for me.

> > Back then, very few ophthalmic surgeons knew how to treat it,

> although

> > most would have known its symptoms' names (since they're less

rare

> as

> > separate conditions, especially ptosis), and very few, even

today,

> ever

> > see a case in their lives.

> >

> > Until I was about 7, nobody in Australia knew how to fix it,

> although a

> > few had a go at it, without much success. Then one surgeon

> returned from

> > studying in Britain (probably at Moorfields Hospital) and he was

> the

> > only one within 12,000 miles (miles? what are those things

again?)

> able

> > to turn me into the stunning beauty I am today (ha!).

> >

> > > Now, as an adult, I'm interested to know if any surgery is

> possible

> > > at this stage. Anybody have any advice for me?

> >

> > You aren't the only person in this group who is considering

ptosis

> > correction at an "advanced" age, so you're not alone. Not me, I'm

> all

> > done, but there's a guy about our age in sunny Texas (the state

in

> the

> > USA, not the NSW/QLD border town) considering having his ptosis

> fixed at

> > last.

> >

> > I seem to recall ptosis is a not-too-uncommon late-onset problem

> for old

> > folks, not just those who've had it all along like us. But I'm no

> doc,

> > so maybe you could ask your nearest occuloplastic bloke or

> ophthalmic

> > surgeon.

> >

> > > Thanks, and hugs!

> >

> > Much appreciated; it's winter over here in Oz. :-)

> >

> > Rob W