Guest guest Posted August 15, 2005 Report Share Posted August 15, 2005 Hi Sharon, I feel for you and . My son Brock was just diagnosed at 5 years old with Oh Do Syndrome, which has the bleph with it. I know there are hearing difficulties sometimes associated with OhDo, as well as some other issues. My son does not have hearing difficulties at this point, but they said he should be tested yearly for this. I will keep you and in my prayers. Sincerely, Kim Sharon A <besilly12000@...> wrote: Hi All..... Most of you know me already so I wont go thru the wole story.. (10 weeks) goes every 10 days to the eye dr .....Now she is not following objects with her eyes at all...nor is she looking and me most of the time ..she turns to one direction to her right ....that we are dealing with ..... Problem: We don't think she is hearing most of the time. If you talk to her she doesn't turn her head, she doesn't react to loud noise etc. I have been to her pedrition and she said to go see a specialist ...So far we have an appointment for next Wed although i am working on getting something sooner......she passed the newborn screaning but i assume that isnt an accurate test either MY QUESTION: ..........WHAT OTHER PROBLEMS ARE RELATED TO THIS CONDITION....CAN HER HEALING LOSS BE RELATED ??? THANKS EVERYONE ..FALLING APART RIGHT NOW ...crying all day. <a href="http://www.TickerFactory.com/"><img border="0" src="http://www.TickerFactory.com/ezt/d/1;14;11/st/20050609/k/3901/preg.png"></a> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2005 Report Share Posted August 15, 2005 I never heard of that is that part of Bleph Syndrome also...Thanks so much ..Hope you little guy is doing well....Hugs SHaron kim mcnatt <kim_mcnatt@...> wrote: Hi Sharon, I feel for you and . My son Brock was just diagnosed at 5 years old with Oh Do Syndrome, which has the bleph with it. I know there are hearing difficulties sometimes associated with OhDo, as well as some other issues. My son does not have hearing difficulties at this point, but they said he should be tested yearly for this. I will keep you and in my prayers. Sincerely, Kim Sharon A <besilly12000@...> wrote: Hi All..... Most of you know me already so I wont go thru the wole story.. (10 weeks) goes every 10 days to the eye dr .....Now she is not following objects with her eyes at all...nor is she looking and me most of the time ..she turns to one direction to her right ....that we are dealing with ..... Problem: We don't think she is hearing most of the time. If you talk to her she doesn't turn her head, she doesn't react to loud noise etc. I have been to her pedrition and she said to go see a specialist ...So far we have an appointment for next Wed although i am working on getting something sooner......she passed the newborn screaning but i assume that isnt an accurate test either MY QUESTION: ..........WHAT OTHER PROBLEMS ARE RELATED TO THIS CONDITION....CAN HER HEALING LOSS BE RELATED ??? THANKS EVERYONE ..FALLING APART RIGHT NOW ...crying all day. <a href="http://www.TickerFactory.com/"><img border="0" src="http://www.TickerFactory.com/ezt/d/1;14;11/st/20050609/k/3901/preg.png"></a> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 Praying for ! Please let us know what you find out from the audiologist. Hugs, April Eisele --- Sharon A <besilly12000@...> wrote: > > Hi All..... > > Most of you know me already so I wont go thru the > wole story.. (10 weeks) goes every 10 days to > the eye dr .....Now she is not following objects > with her eyes at all...nor is she looking and me > most of the time ..she turns to one direction to her > right ....that we are dealing with ..... > > Problem: We don't think she is hearing most of the > time. If you talk to her she doesn't turn her head, > she doesn't react to loud noise etc. I have been to > her pedrition and she said to go see a specialist > ...So far we have an appointment for next Wed > although i am working on getting something > sooner......she passed the newborn screaning but i > assume that isnt an accurate test either > > MY QUESTION: ..........WHAT OTHER PROBLEMS ARE > RELATED TO THIS CONDITION....CAN HER HEALING LOSS BE > RELATED ??? THANKS EVERYONE ..FALLING APART RIGHT > NOW ...crying all day. > > > > > <a href= " http://www.TickerFactory.com/ " > > <img border= " 0 " > src= " http://www.TickerFactory.com/ezt/d/1;14;11/st/20050609/k/3901/preg.png " ></a\ > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.