vision

[Guest guest]

In a message dated 12/22/00 12:15:41 PM Central Standard Time, liamm@...

writes:

<< Could anyone tell me if their child has had improvements in vision after

beginning chelation? Thanks, >>

Yes for my son but even moreso with CLO. My eyes have improved with my

chelation. When I went to the doc to get new glasses, he said my old ones

were much stronger than I needed and I had noticed that I was able to go

without glasses more recently.

Gaylen

[Guest guest]

In a message dated 12/15/01 10:18:49 AM Pacific Standard Time,

pappadia@... writes:

> Has anyone noticed problems with their children's eyes?

Yes. When i was stricken with Ulcerative colitis, and experienced the onset

of my CFS, my perfect 20-20 vision was radically altered. I am now near

sighted, words jump on te page whrn i'm reading, and at times i can't even

watch T.V.

My ASD daughter also has eye problems and wears glasses for fine motor

tasks.

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

[Guest guest]

,

I think vision is a factor for a number of children. At one time I was

following 6 kids with visual problems that fit the pattern. You expect a

certain percentage of every group of kids to have some with visual problems

but this group, at the time that I was following them was more than one would

expect. This is yet another area that has to be researched. Kathy -NNY

[Guest guest]

Can anyone suggest some specialist that deal with

autism and eye care? I been wondering about my son's

vision, but there seems to a shortage of doctors in

the NC & VA area who are equipped to handling these

kids. It is very frustrating.

Any suggestions!!!!

sharnita

--- M Pappadia <pappadia@...> wrote:

> Has anyone noticed problems with their children's

> eyes? Last March my

> son was diagnosed with convergence insufficiency.

> We noticed that he

> squinted or shut one eye while he was doing near

> point work. With

> therapy, he had stopped squinting by July. With our

> recent move across

> country, we stopped doing the therapy at home and by

> October he was again

> squinting one eye. We didn't do the therapy but saw

> another doctor

> instead who diagnosed him with strabismus. That was

> two weeks ago.

> Since then Dr. Goldberg has switched him from

> Celexa, which was causing

> agitation, to Zoloft. Before the switch my son also

> began being tactile

> and auditory defensive again (we haven't seen that

> in about a year). We

> are two weeks into the Zoloft and he is squinting

> his eye much less and

> the tactile and auditory defensiveness is almost

> gone (very few episodes

> this week). We are seeing a second eye doctor at

> s Hopkins in

> January. Dr. Goldberg thought these problems could

> be due to processing

> issues but is very interested in what we find out at

> Hopkins. Has anyone

> else noticed eye problems when their kids'

> processing was bad? Or maybe

> an improvement when their processing is good? How

> about with sensory

> integration dysfunction? My son's has definately

> improved since starting

> with Dr. Goldberg and this is the first time he has

> regressed this much.

> Just interested if anyone else has been through this

> kind of thing

> before. Thanks!

>

>

________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for

> less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.

>

>

__________________________________________________

[Guest guest]

Dr Goldberg recommended:

Dr Friedman, a paediatric ophthalmologist,

5400 Balboa Blvd, suite 131.

Encino CA 91316

ph: 1-818-783 9700

fax: 1-818 784 2900

We took our son their last year when we visited Dr Goldberg, who is nearby.

Dr Friedman was just wonderful - has a brilliant set-up for children, and

seemed very experienced in handling our kids. was a model patient too

he said - but I put that down to Dr Friedman's superb set-up and the way he

worked with Chris. We had similar issues with as you do Sharnita,

however came out from Dr Friedman's with a report of no problems at

all. It appears that these eye issues were processing/stimming related and

have since largely resolved. The piece of mind from the eye exams made it

well worth while.

Re: vision

Can anyone suggest some specialist that deal with

autism and eye care? I been wondering about my son's

vision, but there seems to a shortage of doctors in

the NC & VA area who are equipped to handling these

kids. It is very frustrating.

Any suggestions!!!!

sharnita

--- M Pappadia <pappadia@...> wrote:

> Has anyone noticed problems with their children's

> eyes? Last March my

> son was diagnosed with convergence insufficiency.

> We noticed that he

> squinted or shut one eye while he was doing near

> point work. With

> therapy, he had stopped squinting by July. With our

> recent move across

> country, we stopped doing the therapy at home and by

> October he was again

> squinting one eye. We didn't do the therapy but saw

> another doctor

> instead who diagnosed him with strabismus. That was

> two weeks ago.

> Since then Dr. Goldberg has switched him from

> Celexa, which was causing

> agitation, to Zoloft. Before the switch my son also

> began being tactile

> and auditory defensive again (we haven't seen that

> in about a year). We

> are two weeks into the Zoloft and he is squinting

> his eye much less and

> the tactile and auditory defensiveness is almost

> gone (very few episodes

> this week). We are seeing a second eye doctor at

> s Hopkins in

> January. Dr. Goldberg thought these problems could

> be due to processing

> issues but is very interested in what we find out at

> Hopkins. Has anyone

> else noticed eye problems when their kids'

> processing was bad? Or maybe

> an improvement when their processing is good? How

> about with sensory

> integration dysfunction? My son's has definately

> improved since starting

> with Dr. Goldberg and this is the first time he has

> regressed this much.

> Just interested if anyone else has been through this

> kind of thing

> before. Thanks!

>

>

________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for

> less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.

>

>

__________________________________________________

[Guest guest]

-

What sort of problems did you see with your son's eyes? We are seeing a

third ophthalmologist next week (at s Hopkins). So far, the other

two have given us two different diagnosis (convergence insufficiency and

strabismus - therapy for the first one and recommended surgery for the

second). They have also seen my son at two different times during his

treatment (during a " good " phase when his processing seemed to be much

better and during a very " bad " phase when his processing was terrible).

His eyes definitely seem to be working together better when his

processing is better. I would hate to put him through surgery if this is

something that can be resolved with the right meds helping his

processing, but I would also hate to delay surgery if it is something he

truly needs. How long did it take to get an appointment with Dr.

Friedman? We will probably be in CA in June and if this ophthalmologist

doesn't work out it would probably be worth seeing him too. Thanks!

On Fri, 4 Jan 2002 00:27:28 +0800 " R M "

<rmwilson@...> writes:

> Dr Goldberg recommended:

> Dr Friedman, a paediatric ophthalmologist,

> 5400 Balboa Blvd, suite 131.

> Encino CA 91316

> ph: 1-818-783 9700

> fax: 1-818 784 2900

>

> We took our son their last year when we visited Dr Goldberg, who is

> nearby.

> Dr Friedman was just wonderful - has a brilliant set-up for

> children, and

> seemed very experienced in handling our kids. was a model

> patient too

> he said - but I put that down to Dr Friedman's superb set-up and the

> way he

> worked with Chris. We had similar issues with as you do

> Sharnita,

> however came out from Dr Friedman's with a report of no

> problems at

> all. It appears that these eye issues were processing/stimming

> related and

> have since largely resolved. The piece of mind from the eye exams

> made it

> well worth while.

>

>

>

> Re: vision

>

>

> Can anyone suggest some specialist that deal with

> autism and eye care? I been wondering about my son's

> vision, but there seems to a shortage of doctors in

> the NC & VA area who are equipped to handling these

> kids. It is very frustrating.

> Any suggestions!!!!

> sharnita

>

> --- M Pappadia <pappadia@...> wrote:

> > Has anyone noticed problems with their children's

> > eyes? Last March my

> > son was diagnosed with convergence insufficiency.

> > We noticed that he

> > squinted or shut one eye while he was doing near

> > point work. With

> > therapy, he had stopped squinting by July. With our

> > recent move across

> > country, we stopped doing the therapy at home and by

> > October he was again

> > squinting one eye. We didn't do the therapy but saw

> > another doctor

> > instead who diagnosed him with strabismus. That was

> > two weeks ago.

> > Since then Dr. Goldberg has switched him from

> > Celexa, which was causing

> > agitation, to Zoloft. Before the switch my son also

> > began being tactile

> > and auditory defensive again (we haven't seen that

> > in about a year). We

> > are two weeks into the Zoloft and he is squinting

> > his eye much less and

> > the tactile and auditory defensiveness is almost

> > gone (very few episodes

> > this week). We are seeing a second eye doctor at

> > s Hopkins in

> > January. Dr. Goldberg thought these problems could

> > be due to processing

> > issues but is very interested in what we find out at

> > Hopkins. Has anyone

> > else noticed eye problems when their kids'

> > processing was bad? Or maybe

> > an improvement when their processing is good? How

> > about with sensory

> > integration dysfunction? My son's has definately

> > improved since starting

> > with Dr. Goldberg and this is the first time he has

> > regressed this much.

> > Just interested if anyone else has been through this

> > kind of thing

> > before. Thanks!

> >

> >

> ________________________________________________________________

> > GET INTERNET ACCESS FROM JUNO!

> > Juno offers FREE or PREMIUM Internet access for

> > less!

> > Join Juno today! For your FREE software, visit:

> > http://dl.www.juno.com/get/web/.

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Neil Margolis in the Chicago area is also excellent. I'm checking e-mail

from out of town, so I don't have a phone number at the moment.

Warren

In a message dated 1/3/2002 12:26:07 PM Eastern Standard Time,

rmwilson@... writes:

> Dr Goldberg recommended:

> Dr Friedman, a paediatric ophthalmologist,

> 5400 Balboa Blvd, suite 131.

> Encino CA 91316

> ph: 1-818-783 9700

> fax: 1-818 784 2900

>

> We took our son their last year when we visited Dr Goldberg, who is nearby.

> Dr Friedman was just wonderful - has a brilliant set-up for children, and

> seemed very experienced in handling our kids. was a model patient too

> he said - but I put that down to Dr Friedman's superb set-up and the way he

> worked with Chris. We had similar issues with as you do Sharnita,

> however came out from Dr Friedman's with a report of no problems at

> all. It appears that these eye issues were processing/stimming related and

> have since largely resolved. The piece of mind from the eye exams made it

> well worth while.

>

>

>

> Re: vision

>

>

> Can anyone suggest some specialist that deal with

> autism and eye care? I been wondering about my son's

> vision, but there seems to a shortage of doctors in

> the NC & VA area who are equipped to handling these

> kids. It is very frustrating.

> Any suggestions!!!!

> sharnita

>

> --- M Pappadia <pappadia@...> wrote:

> > Has anyone noticed problems with their children's

> > eyes? Last March my

> > son was diagnosed with convergence insufficiency.

> > We noticed that he

> > squinted or shut one eye while he was doing near

> > point work. With

> > therapy, he had stopped squinting by July. With our

> > recent move across

> > country, we stopped doing the therapy at home and by

> > October he was again

> > squinting one eye. We didn't do the therapy but saw

> > another doctor

> > instead who diagnosed him with strabismus. That was

> > two weeks ago.

> > Since then Dr. Goldberg has switched him from

> > Celexa, which was causing

> > agitation, to Zoloft. Before the switch my son also

> > began being tactile

> > and auditory defensive again (we haven't seen that

> > in about a year). We

> > are two weeks into the Zoloft and he is squinting

> > his eye much less and

> > the tactile and auditory defensiveness is almost

> > gone (very few episodes

> > this week). We are seeing a second eye doctor at

> > s Hopkins in

> > January. Dr. Goldberg thought these problems could

> > be due to processing

> > issues but is very interested in what we find out at

> > Hopkins. Has anyone

> > else noticed eye problems when their kids'

> > processing was bad? Or maybe

> > an improvement when their processing is good? How

> > about with sensory

> > integration dysfunction? My son's has definately

> > improved since starting

> > with Dr. Goldberg and this is the first time he has

> > regressed this much.

> > Just interested if anyone else has been through this

> > kind of thing

> > before. Thanks!

> >

> >

> ________________________________________________________________

> > GET INTERNET ACCESS FROM JUNO!

> > Juno offers FREE or PREMIUM Internet access for

> > less!

> > Join Juno today! For your FREE software, visit:

> > http://dl.www.juno.com/get/web/.

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Chris's problems were eyes rolling back, some very strange

focussing/squinting and excessive use of peripheral vision - ie turning eyes

one way and head the other and looking out of the extreme corners.

We had come out of trial on Celexa at the time and went back to Paxil. We

then tried Zoloft, and when we hit the high dose mark, this started again.

We are now back on a low Celexa dose (having tried prozac for the second

time) in between and this problem seems to have resolved.

We had little trouble getting an appointment with Dr Friedman - I was

referred by Dr Goldberg, and Dr Friedman wrote a report on back to Dr

Goldberg. Since we travel such a long way, we plan our trips several months

in advance, so I guess it was about 6-8 weeks out that we got the booking

with Dr Friedman. I'd call and check availabilities, and book a slot for

June in any case - you can always cancel!

Best wishes

RObert

Re: vision

>

>

> Can anyone suggest some specialist that deal with

> autism and eye care? I been wondering about my son's

> vision, but there seems to a shortage of doctors in

> the NC & VA area who are equipped to handling these

> kids. It is very frustrating.

> Any suggestions!!!!

> sharnita

>

> --- M Pappadia <pappadia@...> wrote:

> > Has anyone noticed problems with their children's

> > eyes? Last March my

> > son was diagnosed with convergence insufficiency.

> > We noticed that he

> > squinted or shut one eye while he was doing near

> > point work. With

> > therapy, he had stopped squinting by July. With our

> > recent move across

> > country, we stopped doing the therapy at home and by

> > October he was again

> > squinting one eye. We didn't do the therapy but saw

> > another doctor

> > instead who diagnosed him with strabismus. That was

> > two weeks ago.

> > Since then Dr. Goldberg has switched him from

> > Celexa, which was causing

> > agitation, to Zoloft. Before the switch my son also

> > began being tactile

> > and auditory defensive again (we haven't seen that

> > in about a year). We

> > are two weeks into the Zoloft and he is squinting

> > his eye much less and

> > the tactile and auditory defensiveness is almost

> > gone (very few episodes

> > this week). We are seeing a second eye doctor at

> > s Hopkins in

> > January. Dr. Goldberg thought these problems could

> > be due to processing

> > issues but is very interested in what we find out at

> > Hopkins. Has anyone

> > else noticed eye problems when their kids'

> > processing was bad? Or maybe

> > an improvement when their processing is good? How

> > about with sensory

> > integration dysfunction? My son's has definately

> > improved since starting

> > with Dr. Goldberg and this is the first time he has

> > regressed this much.

> > Just interested if anyone else has been through this

> > kind of thing

> > before. Thanks!

> >

> >

> ________________________________________________________________

> > GET INTERNET ACCESS FROM JUNO!

> > Juno offers FREE or PREMIUM Internet access for

> > less!

> > Join Juno today! For your FREE software, visit:

> > http://dl.www.juno.com/get/web/.

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Thanks Warren - we went to see him up until we left the Chicago area.

We did the therapy in the summer when my son's eyes weren't under alot of

stress and had fantastic success. The problems started again this fall

when school resumed.

On Fri, 4 Jan 2002 13:30:32 EST warrenlea@... writes:

> Neil Margolis in the Chicago area is also excellent. I'm checking

> e-mail

> from out of town, so I don't have a phone number at the moment.

>

> Warren

>

> In a message dated 1/3/2002 12:26:07 PM Eastern Standard Time,

> rmwilson@... writes:

>

>

> > Dr Goldberg recommended:

> > Dr Friedman, a paediatric ophthalmologist,

> > 5400 Balboa Blvd, suite 131.

> > Encino CA 91316

> > ph: 1-818-783 9700

> > fax: 1-818 784 2900

> >

> > We took our son their last year when we visited Dr Goldberg, who

> is nearby.

> > Dr Friedman was just wonderful - has a brilliant set-up for

> children, and

> > seemed very experienced in handling our kids. was a model

> patient too

> > he said - but I put that down to Dr Friedman's superb set-up and

> the way he

> > worked with Chris. We had similar issues with as you do

> Sharnita,

> > however came out from Dr Friedman's with a report of no

> problems at

> > all. It appears that these eye issues were processing/stimming

> related and

> > have since largely resolved. The piece of mind from the eye exams

> made it

> > well worth while.

> >

> >

> >

> > Re: vision

> >

> >

> > Can anyone suggest some specialist that deal with

> > autism and eye care? I been wondering about my son's

> > vision, but there seems to a shortage of doctors in

> > the NC & VA area who are equipped to handling these

> > kids. It is very frustrating.

> > Any suggestions!!!!

> > sharnita

> >

> > --- M Pappadia <pappadia@...> wrote:

> > > Has anyone noticed problems with their children's

> > > eyes? Last March my

> > > son was diagnosed with convergence insufficiency.

> > > We noticed that he

> > > squinted or shut one eye while he was doing near

> > > point work. With

> > > therapy, he had stopped squinting by July. With our

> > > recent move across

> > > country, we stopped doing the therapy at home and by

> > > October he was again

> > > squinting one eye. We didn't do the therapy but saw

> > > another doctor

> > > instead who diagnosed him with strabismus. That was

> > > two weeks ago.

> > > Since then Dr. Goldberg has switched him from

> > > Celexa, which was causing

> > > agitation, to Zoloft. Before the switch my son also

> > > began being tactile

> > > and auditory defensive again (we haven't seen that

> > > in about a year). We

> > > are two weeks into the Zoloft and he is squinting

> > > his eye much less and

> > > the tactile and auditory defensiveness is almost

> > > gone (very few episodes

> > > this week). We are seeing a second eye doctor at

> > > s Hopkins in

> > > January. Dr. Goldberg thought these problems could

> > > be due to processing

> > > issues but is very interested in what we find out at

> > > Hopkins. Has anyone

> > > else noticed eye problems when their kids'

> > > processing was bad? Or maybe

> > > an improvement when their processing is good? How

> > > about with sensory

> > > integration dysfunction? My son's has definately

> > > improved since starting

> > > with Dr. Goldberg and this is the first time he has

> > > regressed this much.

> > > Just interested if anyone else has been through this

> > > kind of thing

> > > before. Thanks!

> > >

> > >

> > ________________________________________________________________

> > > GET INTERNET ACCESS FROM JUNO!

> > > Juno offers FREE or PREMIUM Internet access for

> > > less!

> > > Join Juno today! For your FREE software, visit:

> > > http://dl.www.juno.com/get/web/.

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Caroline,

We took my son recently to a neuro-opthomalogist. He was the first to

diagnose his vision difficulties (although he'd been to two opthomologists

previously). If there is something similar in your area, I would recommend

it.

Sharon

Unlocking Autism's

Wings for Little Angels Program

" Helping Those with Autism Soar "

[Guest guest]

Caroline -

My 8 year old son also has vision problems. We started out with Dr.

Margolis in Chicago and we did vision therapy there which was fairly

successful. However, when he started to have more processing problems

while we were trying to find the right SSRI his vision again

deteriorated. We have good days and bad days now, and he squints more

when he has bad days (to occlude the vision in one eye so he doesn't see

double). The official diagnosis is strabismus. He doesn't have the same

issues as your child, though, but we have found a wonderful dr here in

Baltimore through s Hopkins. When I explained the good days/ bad

days problem he totally agreed that processing plays a role in vision

issues. He completely agreed with Dr. Goldberg's treatment after I

explained about . We decided to wait on surgery (the only way to

treat my son's problem) until we had the SSRI at the right dosage. At

the end of the appointment he asked if my son had any other diagnosis and

I mentioned that he had been diagnosed with autism/PDD a few years ago.

He told me that he hoped that diagnosis had been thrown out. It was a

wonderful moment. Anyway, his name is Dr. Repka (professor of

ophthalmology, associate professor of pediatrics, strabismus and

pediatric ophthalmology, neuro-opthalomology). Let me know if you are

interested and I can give you more info on him (we saw him in

Lutherville, MD).

Good luck!

On Fri, 15 Feb 2002 15:42:10 -0500 Caroline Glover <sfglover@...>

writes:

> Dear Listmates,

>

> Does anyone have a child who has problems with color blindness or

> other

> visual processing difficulties? We have just returned from an

> appointment

> at Riley Children's Hospital in Indianapolis. They feel that our

> son may

> have a degenerative eye problem because he is experiencing color

> blindness

> and other vision difficulties (and his vision tested slightly worse

> than

> when they checked him two months ago). I asked if this could

> instead be a

> " processing " problem, and they really didn't understand the concept.

> I need

> to find an ophthalmologist we can consult with who understands " the

> autistic

> spectrum " .

>

> I know that Dr. Friedman in California is great, but we're in

> Indiana. We'd

> be willing to make quite a drive to see the right person, but I'd

> like to

> find someone closer than California.

>

> Maybe I'm in denial, but I think that the visual problems may be

> related to

> poor processing (color blindness, poor central vision, photophobia).

> I hope

> that's what it is, because the other alternative seems to be that

> this may

> be Cone-Rod Dystrophy and our son will slowly go blind.

>

> I remember someone mentioned a Dr. Neil Margolis in Chicago. Is

> anyone

> familiar with him? Is he who I would see for this type of problem?

> Help!

>

> Thanks in advance.

>

> Caroline

>

>

>

>

[Guest guest]

My son had some vision problems early on. He was heavily ADHD (no brain

injuries, appears genetic with him). He had a lot of trouble telling colors

and reversing numbers. He also had some speech problems, i.e. couldn't say

'sch' words like 'school' he would call 'goul'. All of this changed and

never came back when we did a training called Auditory Integration Training

(AIT). You can find out more about it by going to their site,

http://www.georgianainstitute.org/

They primary work with autism, but also help with other problems like we had

(ADHD).

I cannot say if it will help you, but it helped us. I thought I'd send it

to you as another lead to look into.

Good luck.

Best wishes,

P.S. The Georgiana Institute is familiar with processing disorders. They

may have some additional ideas that may help.

Vision

> Dear Listmates,

>

> Does anyone have a child who has problems with color blindness or other

> visual processing difficulties? We have just returned from an appointment

> at Riley Children's Hospital in Indianapolis. They feel that our son may

> have a degenerative eye problem because he is experiencing color blindness

> and other vision difficulties (and his vision tested slightly worse than

> when they checked him two months ago). I asked if this could instead be a

> " processing " problem, and they really didn't understand the concept. I

need

> to find an ophthalmologist we can consult with who understands " the

autistic

> spectrum " .

>

> I know that Dr. Friedman in California is great, but we're in Indiana.

We'd

> be willing to make quite a drive to see the right person, but I'd like to

> find someone closer than California.

>

> Maybe I'm in denial, but I think that the visual problems may be related

to

> poor processing (color blindness, poor central vision, photophobia). I

hope

> that's what it is, because the other alternative seems to be that this may

> be Cone-Rod Dystrophy and our son will slowly go blind.

>

> I remember someone mentioned a Dr. Neil Margolis in Chicago. Is anyone

> familiar with him? Is he who I would see for this type of problem? Help!

>

> Thanks in advance.

>

> Caroline

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

[Guest guest]

I have 2 kids with visual processing difficulties, but neither have

color problems. However, reading your letter reminded me of my own

experience. I have CFS, and discovered that taking an herbal tonic

that was supposed to oxygenate the blood really did improve my vision

from " grey fog " to brilliant color after 30 days of faithful use. (I

no longer take it because I developed diarrhea in response to one of

the ingredients....) If you can find something that will increase the

blood flow to the frontal lobe (refer to NeuroSPECT scans), as this

product may have, you might find your child's color blindness

dissapating. (It's just my theory.)

Also, I have begun to develop visual disturbances relating to the

onset of migraines due to food allergy (must be perimenopausal, says

the opthamologist). The first effect is at night after the lights are

out. If I open my eyes and look at the window, everything is blue

(rods and cones malfunctioning?). It can take up to 5 minutes to go

away, or I can just go to sleep. (Coenzyme Q10, grape seed extract,

and any other anti-oxidants I can think of usually prevent further

symptoms, especially if I lay off the caffeine and avoid fermented

foods or chocolate.)

So there are several possible causes of color perception difficulties,

and these two are just what I have personally experienced. Does your

son experience migraines due to food allergy?

> Dear Listmates,

>

> Does anyone have a child who has problems with color blindness or

other

> visual processing difficulties? We have just returned from an

appointment

> at Riley Children's Hospital in Indianapolis. They feel that our

son may

> have a degenerative eye problem because he is experiencing color

blindness

> and other vision difficulties (and his vision tested slightly worse

than

> when they checked him two months ago). I asked if this could

instead be a

> " processing " problem, and they really didn't understand the concept.

I need

> to find an ophthalmologist we can consult with who understands " the

autistic

> spectrum " .

>

> I know that Dr. Friedman in California is great, but we're in

Indiana. We'd

> be willing to make quite a drive to see the right person, but I'd

like to

> find someone closer than California.

>

> Maybe I'm in denial, but I think that the visual problems may be

related to

> poor processing (color blindness, poor central vision, photophobia).

I hope

> that's what it is, because the other alternative seems to be that

this may

> be Cone-Rod Dystrophy and our son will slowly go blind.

>

> I remember someone mentioned a Dr. Neil Margolis in Chicago. Is

anyone

> familiar with him? Is he who I would see for this type of problem?

Help!

>

> Thanks in advance.

>

> Caroline

[Guest guest]

In a message dated 2/18/2002 1:05:13 PM Central Standard Time,

sw20895@... writes:

> discovered that taking an herbal tonic

> that was supposed to oxygenate the blood really did improve my vision

> from " grey fog " to brilliant color after 30 days of faithful use.

Do you mind sharing the name of the product and where you bought it?

Thanks,

[Guest guest]

Caroline,

Neil Margolis, in northwest suburban Chicago (Arlington Heights) is

excellent. The kinds of things you're describing are right up his alley.

Warren

In a message dated 2/15/02 5:17:04 PM Central Standard Time, sfglover@...

writes:

> I remember someone mentioned a Dr. Neil Margolis in Chicago. Is anyone

> familiar with him? Is he who I would see for this type of problem? Help!

>

>

[Guest guest]

See reply off-list. I have clicked on your name to respond.

> In a message dated 2/18/2002 1:05:13 PM Central Standard Time,

> sw20895@y... writes:

>

>

> > discovered that taking an herbal tonic

> > that was supposed to oxygenate the blood really did improve my

vision

> > from " grey fog " to brilliant color after 30 days of faithful use.

>

> Do you mind sharing the name of the product and where you bought it?

> Thanks,

>

>

>

>

[Guest guest]

To M. - I tried to reply but your address did not work.

[Guest guest]

Hi Caroline,

I think we have all experienced some type of visual problems. The

photophobia has been a problem for me and my 12yo. His light sensitivities

get really extreme whenever his OCD returned. My older son was having

problems with the pressure in his eyes. We found out because in high school

he ended up needing glasses because he couldn't see the board. The eye doc

was keeping tabs on it and thankfully the pressure went down during

treatment.

I found a few things that may relate to all of this. They have been looking

at the visual problems in CFIDS. If you look at the second abstract, it

discusses how the brain processes colors. I would think that it's possible

to have the same type of difficulties when it's a functional problem.

Cheryl

Percept Mot Skills 2001 Oct;93(2):486-504 Related Articles, Books, LinkOut

A biochemical analysis of people with chronic fatigue who have Irlen

Syndrome: speculation concerning immune system dysfunction.

GL, McGregor NR, TK, RH, Butt H.

Special Education Centre, University of Newcastle, Callaghan, New South

Wales, Australia.

This study investigated the biological basis of visual processing

disabilities in adults with Chronic Fatigue Syndrome. The study involved 61

adults with symptoms of Chronic Fatigue Syndrome who were screened for

visual processing problems (Irlen Syndrome) and divided into two groups

according to the severity of symptoms of Irlen Syndrome. Significant

variations were identified in blood lipids and urine amino and organic acids

of the two groups, which may be indicative of activation of the immune

system due to some infective agent. It was suggested that metabolic

profiling may help the development of more valid diagnostic categories and

allow more investigation of immune system dysfunction as a possible causal

factor in a range of learning and behaviour disorders.

PMID: 11769907 [PubMed - in process]

Neuropsychologia 2000;38(8):1170-9 Related Articles, Books, LinkOut

A functional MRI case study of acquired cerebral dyschromatopsia.

Beauchamp MS, Haxby JV, Rosen AC, DeYoe EA.

Section on Functional Brain Imaging, National Institute of Mental Health, 10

Center Drive MSC 1366, Building 10, Room 4C104, Bethesda, MD 20892-1366,

USA. mbeauchamp@...

Evidence from imaging studies suggests that primary visual cortex and

multiple areas in ventral occipitotemporal cortex subserve color perception

in humans. To learn more about the organization of these areas, we used

structural and functional MRI (fMRI) to examine a patient with damage to

ventral cortex. An art professor, KG, suffered a cerebrovascular accident

during heart surgery that impaired his ability to perceive color. The

Farnsworth-Munsell 100-Hue test was used to assess the extent of his

deficit. When tested 12 months after the lesion, KG performed worse than 95%

of age-matched normals on the 100-Hue test, but well above chance.

Structural and functional MRI studies were conducted 3 years after the

lesion to investigate the neuroanatomical correlates of KG'ss remaining

color ability. Structural MRI revealed bilateral damage to ventral

occipitotemporal cortex. In young and age-matched normal controls, an fMRI

version of the 100-Hue reliably activated bilateral, color-selective regions

in primary visual cortex and anterior and posterior ventral cortex. In

subject KG, color-selective cortex was found in bilateral primary visual

cortex. In ventral cortex, no color-selective activity was observed in right

ventral cortex, and only a small area of activity was observed in left

anterior ventral cortex. However, significant color-selective activity was

observed in posterior left ventral cortex spared by the lesion. This

posterior left ventral activation was similar in extent, position, and

degree of color-selectivity to the posterior left posterior activation

observed in normal controls, suggesting that this focus may be the cortical

substrate underlying KG's remaining color perception.

PMID: 10838151 [PubMed - indexed for MEDLINE]

>From: Caroline Glover <sfglover@...>

>Reply-

>< >

>Subject: Vision

>Date: Fri, 15 Feb 2002 15:42:10 -0500

>

>Dear Listmates,

>

>Does anyone have a child who has problems with color blindness or other

>visual processing difficulties? We have just returned from an appointment

>at Riley Children's Hospital in Indianapolis. They feel that our son may

>have a degenerative eye problem because he is experiencing color blindness

>and other vision difficulties (and his vision tested slightly worse than

>when they checked him two months ago). I asked if this could instead be a

> " processing " problem, and they really didn't understand the concept. I

>need

>to find an ophthalmologist we can consult with who understands " the

>autistic

>spectrum " .

>

>I know that Dr. Friedman in California is great, but we're in Indiana.

>We'd

>be willing to make quite a drive to see the right person, but I'd like to

>find someone closer than California.

>

>Maybe I'm in denial, but I think that the visual problems may be related to

>poor processing (color blindness, poor central vision, photophobia). I

>hope

>that's what it is, because the other alternative seems to be that this may

>be Cone-Rod Dystrophy and our son will slowly go blind.

>

>I remember someone mentioned a Dr. Neil Margolis in Chicago. Is anyone

>familiar with him? Is he who I would see for this type of problem? Help!

>

>Thanks in advance.

>

>Caroline

>

>

>

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Hi

Lily had her vision checked again yesterday. She is almost 10 months old. She has her vision checked every 3 months, she has a considerable diffference between the left and right eyes, astigmatism and is farsighted. Dr. says if she continues this way she will need glasses as a toddler. The discrepancy between the two eyes makes it a risk for lazy eye to develop which we want to avoid. I know she is going to need them at least by kinder or 1st grade, but it just seems like it would be difficult to keep glasses on a baby.

So far Lily has been like me in every way. My left eye is lazy and I had glasses at 5 and vision therapy and it just never seemed to work. My eyesight is not so bad, the glasses just help with the weird "floating" of the left eye.

What have you all experienced with little ones? At 10 months, it's hard to accurately test her vision, and also her vision can (hopefully) improve on it's own.

thanks,

Beth

Mobile Take with you! Check email on your mobile phone.

[Guest guest]

HI!, sorry, i just can read but not write in

inglish!!!, Beth: Valentina, de 8 meses fue a

consultar a un oftalmologo y me dijeron que no hay

como hacer tests en sus ojitos para saber si tiene

problemas de vision por su corta edad, me recomiendan

esperar hasta que cumpla un año y recien entonces

hacerle un " fondo de ojos " . Cuales son los test que le

hicieron a Lily ??, le pusieron algun liquido , algo

en sus ojos?.

Gracias, disculpa por escribirte en español , ungran

beso. moni

--- Beth Gordon <bethgordon03@...> escribió:

> Hi

>

> Lily had her vision checked again yesterday. She is

> almost 10 months old. She has her vision checked

> every 3 months, she has a considerable diffference

> between the left and right eyes, astigmatism and is

> farsighted. Dr. says if she continues this way she

> will need glasses as a toddler. The discrepancy

> between the two eyes makes it a risk for lazy eye to

> develop which we want to avoid. I know she is going

> to need them at least by kinder or 1st grade, but it

> just seems like it would be difficult to keep

> glasses on a baby.

>

> So far Lily has been like me in every way. My left

> eye is lazy and I had glasses at 5 and vision

> therapy and it just never seemed to work. My

> eyesight is not so bad, the glasses just help with

> the weird " floating " of the left eye.

>

> What have you all experienced with little ones? At

> 10 months, it's hard to accurately test her vision,

> and also her vision can (hopefully) improve on it's

> own.

>

> thanks,

>

> Beth

>

>

> ---------------------------------

> Mobile

> Take with you! Check email on your

> mobile phone.

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[Guest guest]

Dear Beth,

Each child is different. However, Kenleys eye sight was so poor that they put her in glasses at 2 and we had no problems. She put them on and started saying see the tree, what are those, meaning leaves, see the colors. Act our biggest prob was getting them off of her to go to bed.

LancasterBeth Gordon <bethgordon03@...> wrote:

Hi

Lily had her vision checked again yesterday. She is almost 10 months old. She has her vision checked every 3 months, she has a considerable diffference between the left and right eyes, astigmatism and is farsighted. Dr. says if she continues this way she will need glasses as a toddler. The discrepancy between the two eyes makes it a risk for lazy eye to develop which we want to avoid. I know she is going to need them at least by kinder or 1st grade, but it just seems like it would be difficult to keep glasses on a baby.

So far Lily has been like me in every way. My left eye is lazy and I had glasses at 5 and vision therapy and it just never seemed to work. My eyesight is not so bad, the glasses just help with the weird "floating" of the left eye.

What have you all experienced with little ones? At 10 months, it's hard to accurately test her vision, and also her vision can (hopefully) improve on it's own.

thanks,

Beth

MobileTake with you! Check email on your mobile phone.