Ptosis associated with Blepharophimosis

[Guest guest]

I feel confident that my son is effected by this condition. He had the

sling surgery for the affected eyelid. However, his eye socket is

obviously smaller. I live in Cincinnati, Ohio and cannot find anyone

here that can help me. Any advice would be appreciated!

Thank you,

Rae Ann

[Guest guest]

Hi

I am originally from Pittsburgh, my dad and I and my baby daughter all

have BPES, however, I did not know we had BPES until my daughter was

born. I thought we had ptosis, that's all we were told. But we did

have epicanthus surgery. It has affected both of our eyes.

There is genetic testing for BPES, although I have never had it done.

Are you trying to find a different doctor in your area? How old is

your son?

Beth Gordon

> I feel confident that my son is effected by this condition. He had

the

> sling surgery for the affected eyelid. However, his eye socket is

> obviously smaller. I live in Cincinnati, Ohio and cannot find

anyone

> here that can help me. Any advice would be appreciated!

>

> Thank you,

>

> Rae Ann