Re: Finally - Aan acurate diagnosis!

[Guest guest]

Hi Bleph family!

I just wanted to let you all know that since my son's birth (just over a year ago), I have fought tooth and nail to get the Drs. here in Cincinnati, Ohio to listen to my concerns about my son's condition. I was ready to leave the state just to find adequate care. Then I found Dr. Miles Burke!

He looked at my son and within just a few minutes and several different visual tests, we got what we have been trying to obtain for a year now. A clear, confident diagnosis!

CONGENITAL THIRD NERVE PALSY (w/Congenital Ptosis)

Although it is not Bleph, it does look similar to someone that is not trained in this field (like me!). At this point, I have not had sufficient time to fully research the condition but for those parents or individuals who are searching for an accurate diagnosis, don't rule this condition out. Dr. Burke stated, in his experience that this condition is even more rare than Bleph.

He has the head tilt that will need to be addressed. He will need corrective lenses because he has nearsightedness in the unaffected eye, and also has 'binocular' vision. The good news is I have a direction to head in. I can now be a more effective parent and advocate for my child's care.

Never accept the first opinion, especially if it doesn't feel right!

Also, I can't find any support groups for children/adults with Third Nerve Palsy and because this group has been nothing less than amazing in my opinion, I have been inspired to start my own!

If anyone has information on Third Nerve Palsy, I'd love to talk!

Good Luck all!

Rae Ann ('s Mom)

for Good Click here to donate to the Hurricane Katrina relief effort.

[Guest guest]

I am so glad you found someone who listened to you and can help you!

So glad to hear you so relieved and happy.

wishing you all the best

Beth and Lily

> Hi Bleph family!

>

> I just wanted to let you all know that since my son's birth (just

over a year ago), I have fought tooth and nail to get the Drs. here

in Cincinnati, Ohio to listen to my concerns about my son's

condition. I was ready to leave the state just to find adequate

care. Then I found Dr. Miles Burke!

>

> He looked at my son and within just a few minutes and several

different visual tests, we got what we have been trying to obtain for

a year now. A clear, confident diagnosis!

>

> CONGENITAL THIRD NERVE PALSY (w/Congenital Ptosis)

>

> Although it is not Bleph, it does look similar to someone that is

not trained in this field (like me!). At this point, I have not had

sufficient time to fully research the condition but for those parents

or individuals who are searching for an accurate diagnosis, don't

rule this condition out. Dr. Burke stated, in his experience that

this condition is even more rare than Bleph.

>

> He has the head tilt that will need to be addressed. He will need

corrective lenses because he has nearsightedness in the unaffected

eye, and also has 'binocular' vision. The good news is I have a

direction to head in. I can now be a more effective parent and

advocate for my child's care.

>

> Never accept the first opinion, especially if it doesn't feel right!

>

> Also, I can't find any support groups for children/adults with

Third Nerve Palsy and because this group has been nothing less than

amazing in my opinion, I have been inspired to start my own!

>

> If anyone has information on Third Nerve Palsy, I'd love to talk!

>

> Good Luck all!

>

> Rae Ann ('s Mom)

>

>

> ---------------------------------

> for Good

> Click here to donate to the Hurricane Katrina relief effort.