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Naomi C.

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Hi everyone,

I'm , Naomi's mom. Ern and I only chanced upon this group

sometime in November this year. Up till then, we, like many of you,

felt like 'orphans'. I was so happy to know that there are people

out there who share my feelings. On the other hand, I was also sad

that there are babies out there having what Naomi has. Thank you for

sharing your beautiful families with us. All of our children are

very special.

As for the recent postings about mean and rude comments, I'm

convinced that every where in this world, there will be people like

that. I've had my fair share of rude and ludicrous comments. I

suppose that saying " sticks and stones will break my bones, but

words will never hurt me " kinda have to hold true for our family

right now. Thanks for sharing about how to deal. It's good advice

about being open and I hope to help Naomi feel right about herself.

As for myself, I find that having a sense of humour towards those

silly comments helps a lot.

Ern shared about using tapes for Naomi's eyelids and yes, it is so

rudimentary, but may be something worth considering especially for

those of you with really young babies. Takes a bit of practise and

knowing your baby, esp nap times! But, on the whole I'm very happy

we took this route. Tapes or no tapes, she's going to get stares, so

we decided no need for surgery till later. Ern's posting the photos

at the moment so you can have a look at how tapes work for Naomi. Do

take care everyone and have a great new year. For those who

celebrate Christmas, have a merry christmas too!

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