Re: American Society of Ophthalmic Plastic.....

[Guest guest]

I will check this site out....I am determined to make my daughter

look as normal as possible also....Even though she has a mild case.

her eyes have not developed since birth and the older she gets the

more different she will look...that's what the pediatrician told

me....You are not alone....I'm with you all the way!!!

take care, love amy

> I was wondering if anyone from the US has utilized the website of

the

> American Society of Ophthalmic Plastic and Reconstructive Surgery

at

> _www.asoprs.org_ (http://www.asoprs.org) ? I think we should all

contact them to suggest

> they do a seminar on BPES. Get the word out, generate some more

interest among

> the top docs.

>

> I am determined to have additional surgeries for my daughter. I

want her to

> look more normal and there must be a really great doctor that can

perform

> this surgery nowadays!! I love our doctor, but I want more. I

know I am not

> alone.

>

> Anyone?

>

> Pam

> Gwyneth's Mom