SV: Re: Re: Drug and congential ptosis or blepharophim...

[Guest guest]

In a message dated 9/15/05 10:14:06 AM Pacific Daylight Time, stina_ls@... writes:

anything to do with BPES, it is a matter of genetic.

I agree~ only thing is .. Pre natal vitamins......

[Guest guest]

In a message dated 9/15/05 12:04:06 PM Pacific Daylight Time, lott_tracy@... writes:

we could say we are given this special children because we are special too and maybe can cope better than others,Thats what I like to think!!!???.

Great way to put I think the same that God chose us to have such abeautiful lil girl... Saw we are strong.... etc:

[Guest guest]

But what causes the gene to mutate for the very first time???KORBINTAI2LUV@... wrote:

In a message dated 9/15/05 10:14:06 AM Pacific Daylight Time, stina_ls@... writes:

anything to do with BPES, it is a matter of genetic.I agree~ only thing is .. Pre natal vitamins......

for Good Click here to donate to the Hurricane Katrina relief effort.

[Guest guest]

It's hard not to feel bad, I feel sad for what Lily has endured and

it's worse knowing that it's not over. That said, I have had BPES for

35 years, and there have been two things that were awful about it.

The guilt and pain my dad had over " giving " it to me, his constant

worrying made me feel like I was someone people should worry about!

The pain I experienced when Lily was tiny, and couldn't open her

eyes, and then 2 surgeries with no success.

You see, what Gwyneth will experience, is not as bad as you think,

it's probably worse for you.

It's not your fault, do you really think that any of us did

something " wrong " to cause this? You seem more logical than that.

>

> > Does anything think it could possibly be pre natal

> > vitamins. I am sick over

> > this?

> >

> > Pam

> >

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