Sunlight

[Guest guest]

Hi

I think most people with BPES are sensitive to sunlight. Here is some

information I put together a while back.

I hope it is useful to you:

Some advice from people with BPES

--------------------------------------

Sunlight / bright light

Most people with BPES that the light bothers them. Even on a winter day,

the bright low sunlight can be very uncomfortable. Here are some ideas:

Make sure that you have some good sunglasses. For babies, try to get some

ski goggles. When you put the goggles on, make sure they are not too tight.

The baby may be trying to use its eyebrows to raise the eyelids.

Try not to have ceiling lights. Wall lights or table lamps are much better.

If you need to use ceiling lights, then try out " up lighters " or Chinese

paper lanterns. Both of these types of shades are able to defuse the light

to all of the room.

In your car, try using screens or shades that attach to windows. Consider

using a floppy hat with a wide brim, you will be able to adjust the hat

easily to provide some protection.

Be extra careful in shops and restaurants. Often they have big glass windows

and doors, letting in lots of light.

Dryness

----------

Some people experience a feeling of dryness. Sometimes they have a medical

condition associated with BPES, perhaps a problem with tears.

Using a simple eye ointment at night is very helpful. Talk to your physician

about this.

If your house is too dry (perhaps from air-conditioning or central heating),

then try hanging out your wet laundry in their room. This will help to

provide moisture in the room. Some people use humidifiers, but some models

can be rather noisy

From:

Shireen Mohandes

[Guest guest]

As much as possible. I live in Michigan, so appreciate where you come from

on this. Eyes are an important thing to allow sun into. Obviously don'st

stare directly into the sun, but spend a half hour per day outside without

sunglasses at a minimum.

Non direct/cloudy days helps without question. As much as you can expose

for as long as you can expose it. The more the better. You can supplement

with 600-800 IU's per day, but sun is still best.

Bruce Guilmette, Ph.D.

Survive Cancer Foundation, Inc.

http://www.survivecancer.net

But the fruit of the Spirit is love, joy, peace, patience, kindness,

goodness, faithfulness, gentleness and self-control. Against such things

there is no law. Galatians 5:22-23 NIV

[ ] sunlight

Bruce

Does this include indirect light e.g. on cloudy rainy days?

And how much skin exposure is necessary - in the Winter here it tends to be

just face and hands?

Thanks

Ian

Date: Thu, 27 Oct 2005

From: " Bruce Guilmette, Ph.D. "

I generally suggest sunlight for a minimum 30 minutes a day as the best

overall source of vitamin D. If concerned about too much, make it 15

minutes early morning and 15 minutes in late afternoon sun.

After that, about 600-800 on top side is sufficient for body needs.