Guest guest Posted September 16, 2005 Report Share Posted September 16, 2005 My 4 month old son, , was just diagnosed w/ BPES. Still gathering information on the condition. He is the first in the family to have this condition. Older brother has the biggest, roundest eyes you could imagine. We have been referred to a Pediatric Opthamologist that specializes in eyelid & orbital reconstruction. We live in a suburb of Rochester, NY. Wondering if anyone else lives in the area and can provide information about DRs. Also would appreciate any information/insight on your expriences with surgery. I am assuming it will be inevitable. By the way, chunkers is 's nickname. Because of his " healthy " thighs. Amie Quote Link to comment Share on other sites More sharing options...
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