Guest guest Posted September 14, 2005 Report Share Posted September 14, 2005 Hi I am curious, how many of you have the same degree or symptoms of BPES? In my family, all 4 of us have been so different from each other. For example, my daughter's ptosis is very severe, she has very little lid function. My grandfather had mild ptosis, I had more epicanthus issues than my daughter has, and more moderate ptosis. I was just wondering about other people. It seems like it would be the same in your own children, but for us the same symptoms have not been reflected in the offspring. Just wondered if anyone else has thought about this... Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2005 Report Share Posted September 15, 2005 'ullo. Yes, the severity of the symptoms seem to vary quite a bit in my family too. My father had almost no sign of BPEI at all, but one of his sisters had at least a moderate dose. Not sure about his father (i.e. my paternal grandfather) as none of us here in Oz (he died in Scotland long before I was born) have ever seen him or even a photo (except from behind - d'oh!). My son also has a very light dose - just trichiasis and entropion, very little ptosis or bleph. But born with a sliding hiatus hernia. On the other hand, I scored the full set of symptoms (moderate ptosis), and a fair bit more besides (e.g. strabismus). Rob W > I am curious, how many of you have the same degree or symptoms of BPES? > In my family, all 4 of us have been so different from each other. For > example, my daughter's ptosis is very severe, she has very little lid > function. My grandfather had mild ptosis, I had more epicanthus issues > than my daughter has, and more moderate ptosis. > > I was just wondering about other people. It seems like it would be the > same in your own children, but for us the same symptoms have not been > reflected in the offspring. > > Just wondered if anyone else has thought about this... > > Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2005 Report Share Posted September 15, 2005 Rob Thank you for sharing, it's curious, isn't it? Beth --- In blepharophimosis , Rob <r.watson@b...> wrote: > 'ullo. > > Yes, the severity of the symptoms seem to vary quite a bit in my family too. > > My father had almost no sign of BPEI at all, but one of his sisters had > at least a moderate dose. Not sure about his father (i.e. my paternal > grandfather) as none of us here in Oz (he died in Scotland long before I > was born) have ever seen him or even a photo (except from behind - d'oh!). > > My son also has a very light dose - just trichiasis and entropion, very > little ptosis or bleph. But born with a sliding hiatus hernia. > > On the other hand, I scored the full set of symptoms (moderate ptosis), > and a fair bit more besides (e.g. strabismus). > > Rob W > > > I am curious, how many of you have the same degree or symptoms of BPES? > > In my family, all 4 of us have been so different from each other. For > > example, my daughter's ptosis is very severe, she has very little lid > > function. My grandfather had mild ptosis, I had more epicanthus issues > > than my daughter has, and more moderate ptosis. > > > > I was just wondering about other people. It seems like it would be the > > same in your own children, but for us the same symptoms have not been > > reflected in the offspring. > > > > Just wondered if anyone else has thought about this... > > > > Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 That is the $64,000.00 question no one knows some men can take very low doses of T and have higher levels. Some men like myself there body eats up the testosteone and I need a lot to keep leveled and to feel good. Norsworthy <norsworthy_david@...> wrote: I read that about half of the men over 50 have low T. Even for men who are hypogonadal in the classic sense, why is it that some men have cognitive symptoms and some men don't? My doctor has primary hypogonadism like me but he still takes monthly shots and has no symptoms. I had been plagued with symptoms until I switched to weekly shots. Any feedback from the forum as of to why? --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Hi, The T level drops from injections at a certain rate for all of us. Many have changed to weekly and some to twice weekly smaller shots with the same amount per month but distributed. The reason is spurts of testosterone yank the body regulation system around. When the boy's hormone regulation system sees a ramp of T, it sometimes converts T to E2 which causes lots of men problems of its own making men feel bad. The testicles shut down when external sources provide more than the body provided before. This loss of that source means you have to provide the normal amount the testicles provided and then enough to raise you above 800 where you can feel the benefits. ernestnolan > > I read that about half of the men over 50 have low T. Even for men who are hypogonadal in the classic sense, why is it that some men have cognitive symptoms and some men don't? My doctor has primary hypogonadism like me but he still takes monthly shots and has no symptoms. I had been plagued with symptoms until I switched to weekly shots. Any feedback from the forum as of to why? > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
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