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Hello everyone! My four year old daughter has been having some

genetic testing done. The doctor thinks she might have BPES or Ohdo

blepharophimosis syndrome. We have to wait untill she gets tested

through Denmark for a complete diagnosis. I do not know much about

this desease. We started gentic testing because of learning delays.

Is BPES linked to delays? Well I am on a timed computer... If it

takes me a while to reply we don't have internet at home, but i would

appricete the feed back.

Thanks,

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