BPES database has 57 entries

[Guest guest]

Hi All

Many of you will already know about our database, but for all the new

people to the group, here is the info:

If you would like to enter information in the database, do this:

1. click here: blepharophimosis/

2. You will see " My Groups " on the left of the screen,

and " blepharophimosis " under it. Click on blepharophimosis

3. Now click on " Database " , this is in the left of the screen, just a

little below " Photos "

4. Click on " BPES List "

5. Now click on " Add Record "

FOR THOSE WHO ALREADY KNOW HOW TO SEE THE PHOTOS - start from step 3

Please note that you do not have to put all the info in. For example,

if you prefer to just enter the country you live in, then that is OK.

I only wanted to put in my first name, so that is what I have done.

How will this help?

- You can easily find people in your area.

- You can see profiles of when people had surgery, and what type

- Lists of surgeons and hospitals where procedures were carried out

- You will be able to contribute towards our understanding of how

many people in the world have BPES

It only takes a few moments to do ... any questions, drop me a line.

Shireen, London, England