(no subject)

[Guest guest]

,

It is terrifying to me that Karrie thinks it's funny to run away from

me. We live on a National Scenic Byway, which is maybe 40 feet from my

front door. I keep the doors locked to keep her in, but Kate will slip

out the side door sometimes and forget to have me lock the door behind

her. There are cars parked constantly in front of my house. The thought

of her slipping between the cars to go " wimmin " (swimming) in the river

across the street makes me sick. I've told her that only the ducks,

geese and eagles can swim in that water.

Since I'm " old " too, I'm not as fast as I used to be. Ahhhh, don't cha

just love life???!!!!!

Sue

[Guest guest]

I always worry

that someone will call her by her name and say something like, " I'm a

friend

of your mommy's and she said to come and get you " .

,

I worry that if Karrie gets away from me, someone stops her and asks her

name, she'd tell them. She wouldn't understand then, if they said, Oh,

your mom said you're to come with me.

> Hey this is New York City, ya know!!!!!

My poor girls would never be allowed out alone in New York

City!!!!LOLOLOL I live in a town of about 450 people. The streets of

New York scare me silly! Course, I only know of them from TV!!!

> Karrie is only 5. youve got a good 5 years to go....

Sigh...you mean 5 more years of the stop, drop, and flop and the wet

noodle, and the " I don't understand what you're saying, cause I'm

running the opposite direction and laughing too hard to hear you " ......

People tell me that having Karrie at my age (I'm 47) will keep me young.

I tell them that it will probably push me over the edge!!

Sue

[Guest guest]

Jessie,

What a great story!!!

When Kate was about 16 months old, I was rocking her and singing to her.

She reached up, patted my cheek with her hand and said, " Don't sing,

Mama " . She had a good ear even early on!!!!

Sue

[Guest guest]

Karrie absolutely hates shopping. I get so stressed out by her being so

hard to deal with, that I try to avoid shopping when I have her with me.

The girls went their dad for 6 hours on New Year's Day. I went to the

mall, and just wandered around, did what I wanted. I looked in the

bookstores, furniture stores (dreaming about what kind of furniture I'll

buy when I get my job!), clothing stores. I didn't even hesitate near

the toy store...walked past it without a backward glance!!!1

Sue

[Guest guest]

In a message dated 1/5/2002 8:14:55 PM Eastern Standard Time, sue@...

writes:

<< Karrie will tell people her name (Kawwie Bown). Phone number and address

are foreign to her Maybe the school WILL work with her more on those

things! >>

That's great that Karrie is speaking so well. Ok, I'm neurotic, but I'm in

good company. My pediatrician's mother calls her a neurotic mother, too. I

had little labels made to put in his clothes with his name & phone number

(including area code) on them. I'm figuring it will help him not lose

clothes (which he loves to shed) and perhaps it will help me find him

someday. As far as safety is concerned, I screech " Danger " at him when he

does something that I think will hurt him, like go to close to the street or

the stove. Scares the heck out of him, and sometimes makes him cry, but it

seems to work, too. His homebased PT will be addressing safety issues, too.

Kathy, Liam's mom (3 1/2)

[Guest guest]

At day care they used to have to watch BJ, as he would leave with nearly anyone.

I think it became a joke to him, as he

would giggle estacially when they went to get him. He also got out of sunday

school once-one stupid, non thinking

mother of 4 left the door to the sunday school open whilst she picked up her

kids, and BJ got out the door-luckily he

went straight for the toilet-was busy putting toilet paper init VERY scary

KVanRyzin@... wrote:

> In a message dated 1/5/02 6:25:25 PM Pacific Standard Time, sue@...

> writes:

>

> > I always worry

> > that someone will call her by her name and say something like, " I'm a

> > friend

> > of your mommy's and she said to come and get you " .

> >

> > ,

> > I worry that if Karrie gets away from me, someone stops her and asks her

> > name, she'd tell them. She wouldn't understand then, if they said, Oh,

> > your mom said you're to come with me.

> >

> >

>

> We work on safety issues often. is soooo oppositional though that he

> probably would refuse to go anywhere someone told him. Actually he has been

> known to attach himself to other families and go walking off with them to see

> if I notice. Scary!!

>

> Karyn

>

>

[Guest guest]

I've decided after reading this thread, that I will be asking the school

to help me out with this issue. I do work with her continually, as I did

her sister, but with her safety at stake and with her being so much more

impulsive than her sister (nothing to do with ds, just personality?), I

need all the help I can get!

Sue

[Guest guest]

In a message dated 1/6/02 12:02:37 AM Central Standard Time, linman42@...

writes:

> well the light changed and he was ahead of amanda and she was slower and

> behind. he wasnt paying attention and the light changed to red in the

> process and there was a car coming that almost didnt stop. So that is

> another prob. amanda is a bit slow crossing the street and i worry that

> the

> cars wouldnt wait for her!

>

> So any ideas would surely be appreciated indeed!!

>

> ~ Mom to 11 DS and 7 NY

>

> I would say safety comes before independence. I would hold her hand for a

> hundred years before I would let her get hit by a car. And I know you

> would too.

>

[Guest guest]

In a message dated 1/6/02 9:03:47 AM Central Standard Time, Mom2lfm@...

writes:

> << Karrie will tell people her name (Kawwie Bown). Phone number and address

> are foreign to her Maybe the school WILL work with her more on those

> things! >>

>

> That's great that Karrie is speaking so well.

The daughter of some friends, Not DS, got left behind at Bible school

one day. The mothers took turns driving. Well, the people there asked her

name which she knew but not her address or phone number. Her mother's name

was Mommie, and she drove a blue car. Kid was not help at all. They were

really relieved when Mommie showed up. I always thought it was funny but it

could be bad too. Jessie

[Guest guest]

I just posted about shopping....I forgot to mention

the bribe/rewards. There were a few, a can of pop at

the end sometimes or for those cloths shopping trips

where had to go maybe pizza or takeout after. Not

everytime but enough to help him think there are some

good reasons to shop. Oh and books at the stores that

sold them were my fav. rewards. loves books and I

hate always rewarding with food too much. Its a bribe

if you tell them before hand so if they don't behave

don't give the bribe. I found that rewards were better

because I could pick out the best behavior at that

trip and reward it. I hope this makes sence because it

seemed to be a very important idea when I was doing

it. Pam

--- KVanRyzin@... wrote:

> In a message dated 1/5/02 11:04:12 AM Pacific

> Standard Time, sue@...

> writes:

>

>

> > Wow, am I feeling better, reading this thread!!

> Karrie has become a

> > nightmare to take shopping!! Since I am single,

> with no family around

> > here, and also can't afford to pay a baby-sitter

> so I can get groceries,

> > it gets extremely frustrating!

> > Is this a forever type thing, or will this, too,

> pass?

> > Sue mom to Kate 12 and Karrie 5 w/ds (definitely

> not related to Sam

> > Walton)

> >

> >

>

> Sue,

> was a terror in the store. He still at (13

> today) isn't great but we've

> got most of the kinks worked out. I don't take him

> to the mall. He can handle

> walmart super-center if I show him the list and we

> can play in the toys when

> done. I don't expect that we could do an hour

> shopping trip.

> My favorite store is a local grocery store because

> they are very tolerant and

> understanding about . They let him help pack

> the groceries and once he

> dropped/threw a container of laundry detergent on

> the floor and they weren't

> upset. They didn't give it any attention and just

> kept going. They also

> employ people with disabilities so I like to support

> them.

> I remember a scene when he was 8 years old and we

> were at the mall. Hubby was

> along and we walked through Sears and hit the

> floor and was not moving.

> My husband was fuming but, he wasn't moving. I ended

> up getting him to walk

> back through the store to leave but that was it.

> You may want to try more frequent shorter trips with

> Karrie and make sure

> that there is a pay off for her helping you get it

> done-like a favorite video

> she can watch after shopping. always liked

> those stupid little quarter

> rides and it was a small price to pay for getting my

> stuff done. Now he is

> too big and instead of a ride he gets to push my car

> remote and make the car

> honk once. The things we do.

>

> Karyn

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Sue, Karrie sounds alot like at that age he was

in kindergarten and doing alot of things like that we

decided he was going threw the terrible twos behavior

wise. LOl the no stage. I just started ignoring the

nos and they didn't seem as bad as when I was spending

too much attention on them.

--- sue brown <sue@...> wrote:

> Joy,

> Friday, Karrie had a horrible morning before she

> left for school. Since

> the school is 3 houses from ours, we walk to and

> from. She yelled no,

> no, no all the way to school. We walked into the

> building and she

> stopped about 10 feet from her classroom door. She

> yelled, " No school, I

> watch Barney " . Her teacher stuck her head out the

> door and said she

> couldn't believe that was Karrie! She said Karrie

> never tells them no or

> refuses to do what she's asked. I guess that's a

> good thing, but makes

> me feel like a rotten mom!

> Karrie will tell people her name (Kawwie Bown).

> Phone number and address

> are foreign to her Maybe the school WILL work

> with her more on those

> things!

> Karrie makes up her own rules for games we play. It

> is always " Kawwie's

> turn " . LOL

> Sue

>

>

__________________________________________________

[Guest guest]

Loree

I am glad both you and Micah are now home, hopefully everything is on the

upswing now!

Sharon

Mom to (10, DS) and (6)

(no subject)

> Hi everyone, Micah is home from the hospital and still on all his meds.

I

> still am a little worried about him as they let him come home while his

> oxygen levels were still dipping. He sees the doctor on wed. and until

then

> we are keeping a COSE EYE on him. Wouldn't you know that my first night

home

> I got struck with that horrendous stomach bug thats going around. When it

> rains it pours. I am feeling better today and now get to face cleaning 8

> days worth of living by my family without a mother around. You guys all

know

> what that means!!!. Anyway, thanks everyone for your love and prayers.

Even

> though I have been through the pneumonia thing with another child, it is

so

> different with our special little ones and their special needs. Knowing

that

> you are all their listening makes it that much easier. Thanks guys for

> everything, especially for understanding and knowing what's going on in my

> heart.

>

> Loree

>

>

>

[Guest guest]

nettie, we had the same thing. Enchilada sauce on the couch, spaghetti sauce

on the floor, eggs everywhere...what a mess. The boys were quiet, but messy!

Beth

[Guest guest]

Interesting that he would be that young. I am 46 and remember not having

much of anything. I Honestly don't get to wishing for the bad old days. I

needed the pill. I work outside the home and love it. I think women who

stay home are great because they now have the CHOICE. Everytime we move, I

miss my microwave like crazy and wonder how people thawed out food before

it. My son would have been in an institution or at home with no education.

My aunt who has polio because there was no vaccine has difficulty walking

now because her limbs are atrophied. This guy can keep his good ole days

and his sense that people then were on the moral high ground. I like today.

Elaine

(no subject)

> > > > How old is Grandpa?

> > > >

> > > > Stay with this - the answer is at the end - it will

> > > > blow you away.

> > > >

> > > > One evening a grandson was talking to his

> > > > grandfather about current events. The grandson asked his grandfather

> > what

> > > he

> > > > thought about the

> > > > shootings at schools, the computer age, and just

> > > > things in general.

> > > >

> > > > The granddad replied, " Well, let me think a minute,

> > > > I was born, before television, penicillin, polio shots, frozen

foods,

> > > Xerox,

> > > > contact lenses, Frisbees and the pill.

> > > >

> > > > There was no radar, credit cards, laser beams or

> > > > ball-point pens.

> > > >

> > > > Man had not invented pantyhose, air conditioners,

> > > > dishwashers, clothes dryers, and the clothes were hung out to dry in

> the

> > > > fresh air and man hadn't yet walked on the moon.

> > > >

> > > > Your grandmother and I got married first-and then

> > > > lived together.

> > > >

> > > > Every family had a father and a mother.

> > > >

> > > > Until I was 25, I called every man older than I,

> > > > 'Sir'-and after I turned 25, I still called policemen and every man

> with

> > a

> > > > title, 'Sir.'

> > > >

> > > > We were before gay-rights, computer-dating, dual

> > > > careers, daycare centers, and group therapy.

> > > >

> > > > Our lives were governed by the Ten Commandments,

> > > > good judgment, and common sense. We were taught to know the

difference

> > > > between right and wrong and to stand up and take responsibility for

> our

> > > > actions.

> > > >

> > > > Serving your country was a privilege; living in this

> > > > country was a bigger privilege. We thought fast food was what people

> ate

> > > > during Lent.

> > > >

> > > > Having a meaningful relationship meant getting along

> > > > with your cousins.

> > > >

> > > > Draft dodgers were people who closed their front

> > > > doors when the evening breeze started.

> > > >

> > > > Time-sharing meant time the family spent together in

> > > > the evenings and weekends not purchasing condominiums.

> > > >

> > > > We never heard of FM radios, tape decks, CDs,

> > > > electric typewriters, yogurt, or guys wearing earrings. We listened

to

> > the

> > > > Big Bands, Jack

> > > > Benny, and the President's speeches on our radios.

> > > >

> > > > And I don't ever remember any kid blowing his brains

> > > > out listening to Tommy Dorsey.

> > > >

> > > > If you saw anything with 'Made in Japan' on it, it

> > > > was junk. The term 'making out' referred to how you did on your

school

> > > exam.

> > > > Pizza Hut, Mc's, and instant coffee were unheard of.

> > > >

> > > > We had 5 & 10 cent stores where you could actually

> > > > buy things for 5 and 10 cents. Ice cream cones, phone calls, rides

on

> a

> > > > streetcar, and a Pepsi were all a nickel. And if you didn't want to

> > > splurge,

> > > > you could

> > > > spend your nickel on enough stamps to mail 1 letter

> > > > and 2 postcards .

> > > >

> > > > You could buy a new Chevy Coupe for $600 but who

> > > > could afford one?

> > > > Too bad, because gas was 11 cents a gallon. In my

> > > > day, 'grass' was mowed, 'coke' was a cold drink, 'pot' was something

> > your

> > > > mother cooked in, and 'rock music' was your grandmother's lullaby.

> > 'Aids'

> > > > were

> > > > helpers in the Principal's office, 'chip' meant a piece of wood,

> > > 'hardware'

> > > > was found in a hardware store, and 'software' wasn't even a word.

> > > >

> > > > And we were the last generation to actually believe

> > > > that a lady needed a husband to have a baby. No wonder people call

us

> > " old

> > > > and confused " and say there is a generation gap. ...and how old do

you

> > > > think I am ???.

> > > >Have your answer, the correct answer is below...

>

>

>

> > > >

> > > >

> > > > This man would be only 58 years old!

>

>

> I did it everybody. I copied and pasted. I am so excited!!! Horay for

> me!!! Loree

>

>

>

[Guest guest]

I retyped it as I don't know how to cut and paste yet.

I guess I've got a lot to learn!!!! I think it was worth reyping though,

what about you? ENJOY!!!!

LOL...Sandy does this sound familiar or what?????

Sandy and I hosted the DS chat for over a year and we didn't know how to copy

and paste. We stayed up till 3:00 am just to figure it out without the help of

our hubbies or kids! Boy, have we come a long way and so will you!

[Guest guest]

started talking just after two years old. Her first word was NO! and

boy did she use that alot. She was signing before she spoke, but once she

started speaking, she stopped signing.

According to the folks who saw her this past weekend, her speech is very

clear and she's a good speaker. She has had the same speech teacher all

through most of elementary school. I think that has helped alot.

Dont worry. When hes ready to speak, or walk, or read, or ride a bike, or do

math, or jump, or hop, or roller blade - he will!

~ Mom to 11 DS and 7 NY

[Guest guest]

started saying little things at around 13 months. He was putting

words together at 2, then he went into a complete setback when the tragedy

struck our family. He lost most of his vocab and refused to speak. He is

15 now and his vocabulary is fairly large, but articulation is sometimes

poor. He also only likes to talk when it suits him.

Elaine

(no subject)

> Hi everyone,

> Can you guys answer a question for me. At what age did most of your

> kids start to say some words? Micah is 15 months old and only says DADA.

He

> did have a hearing problem with fluid (which I know affacts language) and

was

> almost prescribed hearing aids. Now after all this time they are telling

me

> that he is hearing better. (Brain stem test) and to hold off on hearing

aids.

> I know that typically our kids talk late, but when should I really start

to

> worry. We have been using an auditory trainer with him as a precautionary

> measure. What else do youy guys suggest? Any similar experiences? I

swear

> sometimes you feel like your between a rock and a hard place. They tell

me

> for 14 months he can't hear {moderate hearing loss} and all of a sudden in

6

> weeks {from last test} his hearing is almost normal. Does this sound

right

> to youy guys? Anxiously awaiting your abundant wisdom!!!

>

> Loree

>

>

>

[Guest guest]

I don't recall exactly when BJ started to " talk " . We signed with him form 6

months on.....I believe he started to sign

and talk back around the 15-18months stage...maybe about later, as he started to

walk then too..............

Loree5@... wrote:

> Hi everyone,

> Can you guys answer a question for me. At what age did most of your

> kids start to say some words? Micah is 15 months old and only says DADA. He

> did have a hearing problem with fluid (which I know affacts language) and was

> almost prescribed hearing aids. Now after all this time they are telling me

> that he is hearing better. (Brain stem test) and to hold off on hearing aids.

> I know that typically our kids talk late, but when should I really start to

> worry. We have been using an auditory trainer with him as a precautionary

> measure. What else do youy guys suggest? Any similar experiences? I swear

> sometimes you feel like your between a rock and a hard place. They tell me

> for 14 months he can't hear {moderate hearing loss} and all of a sudden in 6

> weeks {from last test} his hearing is almost normal. Does this sound right

> to youy guys? Anxiously awaiting your abundant wisdom!!!

>

> Loree

>

>

[Guest guest]

I certainly don't blame the boy. After all the turmoil, one of the other

aides told me how rough his home life is. My heart aches for this little

guy. A big part of me wants to be there for him, if only for a few hours

a day.

But I think that he might be a lot more capable than the school gives

him credit for. I think he could certainly learn more. He is absolutely

fascinated when I would tie his shoes. Even though he had/has no goals,

other than to draw a vertical line (his yearly goal), I was going to

work with him on shoe tying. Potty training occurred through repetition,

why not other issues?

And I most certainly never thought his family didn't do a good job. I

wondered how they got through the day, if he was this active at home!!

This job was just not for me

Sue

[Guest guest]

In a message dated 1/30/02 4:52:29 PM Canada Central Standard Time,

lisa@... writes:

> I got ready to lift him out and said " here you can take him now " and she

> turned around and walked away.........

> Leis

>

>

hehe, I once got a really nasty look when (who was about 2 yo's) was

screeching in the shopping cart while getting groceries. I mean really, you

would think that lady had never seen a screechy toddler. hehe. I looked at

this lady and asked her if she wanted her. You should have seen the look of

horror on her face. LOL was good. :-) Really I didn't really want my dd at

that time either so I understoof the horror. :-) Perhaps she no longer gave

nasty looks to Mom's with tired, cranky kids. I can hope. :-)

Joy

[Guest guest]

> he then tells me he will turn me into social services .. --

I once told a lady to go right ahead- I had smacked BJ in the supermarket (

after warning him of course) and this lady

marched up and abuses me-saying how dare you etc??? Then she says she will dob

me into docs ( our social services for

kids) and I said go ahead...while we wait for them do you want to take him home

and look after him better than I can???

I got ready to lift him out and said " here you can take him now " and she turned

around anbd walked away.........

Leis

Mum to BJ 4 DS and Jellybean due early Feb 2002

ICQ# 8168619

ID leisbj

" A little worry can break your back,

A little good news can make your heart leap,

A little dew can make the grass live,

A little bee can make honey. "

Ankh-Sheshonk

from: " The Living Wisdom of Ancient Egypt. "

Christian Jacq

[Guest guest]

Maverick usually comes home with about 15 to 20 minutes of homework. It

varies each night. One night is math, another is spelling sentences, another

Edmark worksheets. That gets done after school. After dinner we do 30

minutes to 2 hours of work depending on how things go. Right now they are

learning states so we spend time working on those, then we do spelling

words..(usually we do those in the morning also.) We practice our coin

recognition, counting by 5's to 60 for learning to tell time, we do our

speech routines, we study our edmark flash cards and we practice the drum.

We do phonic flash cards and we work on our number recognition.

I get very frustrated when I go to visit school and see him paging through a

magazine for the hour of math class. When I point out to the aide that THIS

would be a good time for him to be working on the money flash cards that I

sent in, she agrees, but does nothing about it. Maverick loves school, but

we are considering homeschooling him.

[Guest guest]

Sounds like you do great things with Mav, ! It almost sounds like you

homeschool him already....loI! The fact that you had to tell his aide to do

his math flash cards during math instead of flipping through a magazine is

the type of thing that really frosts me about the schools. Why can't they do

this on their own without being watched over by us all the time!!!! Isn't

that their job? It just seems as though it is constant monitoring of things

that should naturally be done. Ugh!

Jackie, Mom to 14ds, 11, and Bradley 8

[Guest guest]

In a message dated 01/31/2002 12:10:57 AM Eastern Standard Time,

Michdock@... writes:

<< Right now they are

learning states so we spend time working on those, >>

Oh the memories you brought back! We found placemats with the states and the

capitols on them and at dinner we LOVED asking what is the capitol of (fill

in the blank) or reverse them and ask what state has a capitol of (fill in

the blank)

I never learned in school that the middle states (North to South) look like

an Indian face but Stef taught me that!

For money, our favorite thing to do was play penny ante poker! ;-) Everyone

got to name some crazy antes, like " ante 33 cents, no dimes allowed " . ;-)

Cheryl in VA

[Guest guest]

hey debbie, mus on is also 3 1/2 with ds and he likes to play that game as

well, he also attends preschool but has not done it at school, he has an aid

that is with him, does your son have one, my sugggestion is that he is not

getting the one on one that he needs at the school so looking at this as the

way to get attention maybe, just a suggestion, sherri,mom to Tayler 3 1/2

with ds and cierra 2 non ds

(no subject)

> Hi everyone! I have a question. I have a 3 1/2 year old son who is in

> preschool. Recently, he has been running away from his classroom down the

> hall, and wanted to know if anyone else had this problem. His teacher

didn't

> realize he was gone until he was halfway down the hall. I wrote her a

note

> asking her if she closes the door.........duh! I think he's playing a

" catch

> me " game with her, because he does this with me at home. what do you guys

> think?

>

> Debbie

> mom of (3 1/2 ds)

>

>

>