Re: Sling surgery

[Guest guest]

Kim,

Praying for your whole family and especially little

Rowan on your drive and through his surgery! Although

I did not experience Micah's surgery with him but I

did see pictures of him just a couple of days after

his sling surgery and was amazed at how wonderful he

looked right away. Please let us know how he is

doing.

Love,

April Eisele, Colorado, USA

Wife to Jon

Mommy to three blessings from Korea:

Mira - age 5

Micah - age 3

Misha - age 2

--- kim_smith_daniel <kimsdaniel@...> wrote:

> Hello all:

>

> My husband and I are driving over to ville,

> FL this afternoon

> (yes, through Hurricane Dennis' wind and rain) for

> our son's first

> sling surgery scheduled for tomorrow at 8:00 a.m.

> Rowan is 10 months

> old and is recovering from a 2-week long cold/cough

> bout. We're not

> even sure that he'll be cleared by anesthesia but

> we're prayfull that

> he will be well enough for the surgery. He's our

> only child with BPES

> so this is all new to us. Upon our return from

> ville I may be

> reaching out to you all with questions relating to

> post-op issues.

>

> Please keep us in your prayers as we travel on

> Interstate 10 today and

> for Rowan's surgery in the morning.

>

> Thanks all,

> Kim

> Tallahassee, FL

>

>

>

__________________________________________________

[Guest guest]

Hello Kim,

This is Kim McNatt, Brock's mom. Good luck to you and Rowan. I know that Dr. Kostick will take good care of you. Call me if you have any questions and I will try to help. God bless, Kim McNattkim_smith_daniel <kimsdaniel@...> wrote:

Hello all:My husband and I are driving over to ville, FL this afternoon (yes, through Hurricane Dennis' wind and rain) for our son's first sling surgery scheduled for tomorrow at 8:00 a.m. Rowan is 10 months old and is recovering from a 2-week long cold/cough bout. We're not even sure that he'll be cleared by anesthesia but we're prayfull that he will be well enough for the surgery. He's our only child with BPES so this is all new to us. Upon our return from ville I may be reaching out to you all with questions relating to post-op issues.Please keep us in your prayers as we travel on Interstate 10 today and for Rowan's surgery in the morning.Thanks all,Kim Tallahassee, FL

[Guest guest]

Dear Kim,

Your situation sounds just like ours when we had 's 1st. sling surgery. That was 2 years ago now. He was getting over a cold. We had the same fears you are having now. All went well. You will be amazed by how wonderful it is to have your child look at you square on without a struggle. Post op will go fine. Don't be afraid. was 5 months old and he did fine. I am happy for you that you are having this done. Be brave and hang in there. God Bless you and your family.

Fondly,

Beth, 's Mommykim_smith_daniel <kimsdaniel@...> wrote:

Hello all:My husband and I are driving over to ville, FL this afternoon (yes, through Hurricane Dennis' wind and rain) for our son's first sling surgery scheduled for tomorrow at 8:00 a.m. Rowan is 10 months old and is recovering from a 2-week long cold/cough bout. We're not even sure that he'll be cleared by anesthesia but we're prayfull that he will be well enough for the surgery. He's our only child with BPES so this is all new to us. Upon our return from ville I may be reaching out to you all with questions relating to post-op issues.Please keep us in your prayers as we travel on Interstate 10 today and for Rowan's surgery in the morning.Thanks all,Kim Tallahassee, FL

[Guest guest]

Kim,

Please let me know how Rowan does. My little will have his first sling surgery on July 19th at Shands/ Gainesville. I'm very nervous as he is only 6 months old. My prayers are with you today.

Annette Garrett

Tallahassee

--https://home.comcast.net/~agarrett0 0/

-------------- Original message -------------- Hello all:My husband and I are driving over to ville, FL this afternoon (yes, through Hurricane Dennis' wind and rain) for our son's first sling surgery scheduled for tomorrow at 8:00 a.m. Rowan is 10 months old and is recovering from a 2-week long cold/cough bout. We're not even sure that he'll be cleared by anesthesia but we're prayfull that he will be well enough for the surgery. He's our only child with BPES so this is all new to us. Upon our return from ville I may be reaching out to you all with questions relating to post-op issues.Please keep us in your prayers as we travel on Interstate 10 today and for Rowan's surgery in the morning.Thanks all,Kim Tallahassee, FL

[Guest guest]

I'm think of going to see Mr Collin in London to discuss the possibility of having more surgery to improve the appearance of my left lid which sags and feels uncomfortable. However, It isn't affecting my vision and I'm beginning to wonder if Mr Collin may not carry out surgery for cosmetic reasons alone. Does anyone know if that might be the case? Conceição Hogg <chogg@...> wrote: Hello Tessa, Thank you for your reply. I guess that if Danny's vision has not been affected and he is nearly 7 (his birthday is in August) then his

BPES condition is probably mild, and in his case the operation will be mainly for cosmetic reasons, right? Wishing you and your son Bipin all the best. Hope you have lovely holidays in Spain when they come. Take care, Hi yes, it's not an easy decision. In Bipin's case Mr Collin thinks thathis eyesight probably will be affected if he doesn't have his lidslifted while he's still young. He's basing this on how much the pupilis covered by the lid (more in the right eye), but also the fact thathis Dad's (Jakesh) sight is very bad in the right eye that also hadthe lower lid. Collin thinks that this is because Jakesh had hissurgery later, from about 6 years old. Of course you never knowexactly but it seems like a good enough reason to have the

op. Ourinitial feeling was that we wouldn't have Bipin go through any ops ifit was purely cosmetic, but since it seems necessary for his eyesightwe decided to go ahead. The way that Collin explained the operationto us is that it is a 'temporary' thing that will last until hissight develops fully - at about 7 yrs old. I'm not exactly sure whattemporary means, if the lid will gradually adjust back to normal...?On the other hand Bipin's aunt (Jakesh's sister) also has BPES andhas never had any surgery and doesn't have particularly bad eyesight.So it's never an exact science.Thanks for your thoughts!Tessa--- In blepharophimosis , Conceição Hogg <chogg@...>wrote:>> Hello Lucy,>> I am , Danny's mum, from Portugal.>> I really do not know how to put this, but I am going to do itanyway.> Danny also had his surgery appointment cancelled

when he was 8months> old, because he had a fever. He is nearly 7 years old now and has> not had any operation yet.>> As I have mentioned before we went to see Mr. Collin last November> and he told us that in Danny's case the operation would not makehim> see any better, it would only make him look more awake.>> Danny is a very happy boy and he does not seem to be affected inany> way by his eyes being different from other people's.>> We just went to the doctor (eye specialist) yesterday for hisannual> vision check-up. He told us, that his vision is not being affected> by his condition, he sees very well and he does not need glasses.> (Mr. Collin in November told us the same.)>> Well, what I wanted to tell you is that I am very happy that Danny> has not been operated yet, and I do not now if , in his

case,being> operated will improve his quality of life. And although we made an> appointment for him to be operated in August by Mr. Collin, I am> having second thoughts about it.>> I remember how much Lucy reminded me of Danny when I met you!>> I am not trying to give you any advice or tell what to do, I just> wanted to let you know what I feel about my son's situation. Ihope> I am not making things more confusing for you, but I could not stop> myself from telling you what I feel about Danny.>> Wishing you all the best.> Love,> >